Is Endometriosis an Auto immune disease? - Endometriosis UK

Endometriosis UK

70,619 members52,121 posts

Is Endometriosis an Auto immune disease?

june_jdr profile image
4 Replies

I have read and spoken to some Endometriosis suffers who not only have or had suffered with Endometriosis but also either SLE, Sjogren's, SIRS or Fibro. Anyone experienced the same or have more information on this topic?

Written by
june_jdr profile image
june_jdr
To view profiles and participate in discussions please or .
Read more about...
4 Replies
84Rach profile image
84Rach

Not to my knowledge (have I experienced it), but there is a big overlap where people with Endo also suffer autoimmune illnesses, I've heard of Crohn's or colitis and rheumatoid arthritis sufferers who have Endo too to add to your list.

Recently, I've looked into Sjogren's, but I'm not sure enough to mention it to the doctor, but I keep finding my eyes are very dry and bloodshot and feel gritty, which is how I stumbled upon Sjogren's, but I may have a few symptoms, just don't want the doctor to think I'm a hypochondriac!

I have had a test for antinuclear antibody (I think it's called) which is used to test for lupus (SLE) and maybe some other autoimmune problems etc but that was negative, which is another thing that I guess would discount Sjogren's.

Another thing I feel I should mention is that my mother had Endometriosis before her hysterectomy, and in her family history there is pernicious anaemia and thyroid problems which I think also have an autoimmune connection.

Looks quite likely that Endometriosis has an autoimmune link, or at least if it is hereditary, it is carried on similar genes to autoimmune problems.

in reply to 84Rach

hi there u say that this endo is hereditary.i also have endo very severe ive also had a hysterectomy because of endometriosis and it isnt no where to be seen in my family.how do we work this one out then.hunnie.x

84Rach profile image
84Rach in reply to

I didn't say it is hereditary, I said IF it is, but I think there is strong evidence that it can be (I think it was in my case). I guess you can probably inherit it from your father's side too, who wouldn't have any symptoms and even his female relatives might not have symptoms because genes work in strange ways!!!

There is also evidence that other things might cause it, and it might even be a mixture of both... you inherit genes that make you more likely to get endometriosis and if you are exposed to some kind of trigger (I don't know what, maybe the scientists don't even know what!) you might get it.

Unfortunately, I don't think enough research has been done, so the doctors and scientists don't even know enough about it to say for sure whether it is inherited or if it is an autoimmune disease. But a lot of evidence does suggest that these things might be the case.

Ekmamtae profile image
Ekmamtae

Apparently if you have endo you are more likely to have allergies - I know this is true for me - also I am Coeliac which is an auto immune disease - so there could be a connection x

You may also like...

Adenomyosis, Endometriosis and Autoimmune diseases

since I have no therapy but only medication to ease the pain) now I got a possible diagnosis of...

Degenerative disc disease and endometriosis!!!!

was always brushed off! YES I DO HAVE ENDOMETRIOSIS AND YES I DO HAVE EXCRUTIATING PAIN FROM IT...

endometriosis and immune system

feel there definitely needs to be more work into linking endometriosis and immune dysfunction/auto...

Endometriosis or kidney disease?

Every month, 2 weeks before my period I have been experiencing lower back pain - this month the...

Endometriosis, eczema and immunity

I'm yet to be diagnosed with endometriosis although the doctors I have seen so far think it is a...