I was previously diagnosed with st2 endo in 2006 and have had two laps privately, the last was last march when I had laser and mirena inserted. Since then bowel symptoms have continued and feel bloated and in pain a lot of the time. My private insurance has now run out so i asked gp to refer me to the specialist centre at UCLH. Been waiting since Oct for my appointment which I had on feb 21st.
I saw a nurse and they gave me an two lengthy and painful internal and external u/s scans one with (I presume) a trainee who said I had adhesions on my rt ovary to the bowel and then she got another dr to come and scan again (very roughly) who said he could see no endometriosis or adhesions. I was very confused, I had always thought you couldn't see endo on an U/s scan???
The nurse was very vague and said she would speak with the consultant and i 'might' be able to 'have a chat' with him but I probably wouldn't get an appointment til April. I should go to my GP and get stronger laxatives. She said she would phone me the following wednesday after the clinic but I could email her too.
So, I have had no phone call from her, no response to two emails and when I phone her number the voicemail is full! AAARGH! and this is a specialist centre?
Feel so confused, no one seems to be able to deal with bowel symptoms and endo. I already spent years having CT Scans and colonoscopy and seeing bowel drs who failed to see anything and failed to think of endo. I self diagnosed via the internet in the end. Just feel SO frustrated, i am sure I have adhesions causing my bowel problem. Should I have another lap or just keep taking more and more movicol?