(Previously posted on the Yuko board) I was diagnosed with endo 12 years ago following a laparoscopy (although received no treatment - long story about health system failings!) Things have been a lot worse for me in the last 2 years or so, especially during the last 6-8 months so I saw a endo specialist. On Thursday last week I had another lap and the specialist (who hasn't seen me yet) wrote on my notes 'No endo' 'No gynae cause for pain'. He's the specialist for my city in the UK and apparently very well regarded, but I feel completely confused.
I was told that endo didn't just disappear and it certainly doesn't feel that way. All of my symptoms fit with the typical and atypical symptoms of endo, but I've been left with no explanation for my pain.
On doing some research today, I came across Camran Nezhat's website which states it can be hard to diagnose because sometimes endo is 'clear' in colour and 'flat'. I've been told by a gynae consultant that my surgeon is very well regarded but I feel very confused by the whole thing.
Has anyone else had their endometriosis diagnosis changed? Has anyone else experienced this? What do you say to the idea that it might be clear i.e hard to see
I'm finding this whole thing incredibly hard. I'm in a lot of pain post-op and AF is about to begin so I know it's going to get worse. I'm at my wits end and feel completely lost. Can anyone identify with this situation?