Ok, I was diagnosed about 4 years ago. I had been symptomatic for 3 years prior. I noticed a small lump in my abdomen. As time progressed it got larger and tended to feel sore to the touch. So if I leaned on something , it would hurt. I had sonograms, vaginal sono, ct scan, colonoscopies x3 and they could find nothing. I had a lap. They did biopsy and found endometriosis. It had attached itself along my c-section scar and thrived off the estrogen I produced each month. A hysterectomy would not solve the problem because the implant is in my abdominal wall. The pain is crazy. Every thing in life began to revolve around my cycles and 10 days after, because even though I stop actually bleeding in 5 days. The implant then decides to act like a uterus, but there is no place to bleed out , so I bleed internally, causing more scar tissue and more pain. I tried Lupron shots for 6 months. It did help the pain, but the side effects are unbelievable. I find that accupuncture helps. I am now just holding out for menopause. Who prays for that? I was told when my estrogen levels drop, the pain will stop because the endometrioma feeds off the estrogen you produce. No one would ever believe the pain, both physically and emotionally this monster causes. Last resort is surgery to excise the deeply embeded endo, Then I would have to have part of my abdomen replaced with mesh. I am 44 and I have 3 children. Life is demanding, I can't afford to be an invalid. I just wish that someone in the medical profession would do something to publicize this strange phenomenon so that they can find another way of treating this disease.
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