Thyroid tests to identify the cause of endometirosis?

Hi,

Has anyone queried or undergone any tests on their thyroid? All I've ever been told is endometriosis is caused by a hormone inbalance and whilst there isn't a 'cure' as such, the symptoms can be managed. I've had ultrasound scans, a laparoscopy, Zoladex injections for just under a year and the mirena coil fitted recently although can't help but wonder if there are any tests that can be carried out on the thyroid gland as this could ultimately be the cause of the hormone inbalance and in turn, the endometriosis. Surely there must be something that can find and treat the CAUSE rather than just the symptoms?

I've written to my specialist querying this but am interested to know if anyone else has asked this before and what they were told (am too inpatient I know!)

Any help much appreciated :o)

Melissa x

11 Replies

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  • Hi

    There are any theories and speculations about what is causing endo in women but not hard evidence so far. This is exactly the reason why there is no cure but only treatments as surgery or hormones.

    Even the hormonal treatments are not aiming to balance hormones, but only to stop oestrogen, because is the hormone that feed the endo. E.g. zoladex injection cause artificial menopause (so no oestrogen produced) or the progesterone type pills that they stop bleeding too.

    I had my hormones checked before and they were fine, but I have endo, so any check for this would be inconclusive.

    My mum has thyroid problems, but she has no endo, in fact she never had period pains!!!

    Keep us informed on what your doctor will say about your query. x

  • Hi

    As far as I'm aware there is no one theory medically accepted as being the cause of endo, hence why only the symptoms can be managed. Without knowing how it is caused/what causes it theres no cure. There are quite a few factors that have been reported as contributing to a possible cause, retrograde bleeding being the most acknowledged by specialists but my gynae told me it's not agreed how/why this happens. I have severe Endo and have had several thyroid tests over the years and all have been normal, I also have a friend with Endo who has had lots of tests to monitor her hormone levels and none have shown anything much out of the ordinary or anything that indicates endo yet she does have Endo.

    Anyways i'd be really interested to hear what your specialist says about this so keep us posted x

  • My doctors has sent my for blood test on my thyroid so this maybe related. x

  • I have an underactive thyroid and am on meds for this. I also have excruciating period pain and in strange places which I am hoping will get better when I am on the right dose of thyroid meds. I have wondered about endometriosis and have a referral to discuss this with a gynae. My thyroid doc said that any part of your body can go wrong when your thyroid hormone levels are wrong e.g. levels of other hormones, oestrogen etc, so it could well be related.

    Many people who have the thyroid blood tests and are hypothyroid get missed because they fall within the 'normal range' as it is far too wide. Other countries have ranges which are much narrower than the UKs, and even they are too wide, but they show a lot more people to have 'abnormal' results and so more people get treated.

    In short - if your doc says you're not hypothyroid, don't take their word for it, you might still benefit from thyroid medication. Look into it yourself (sad and not the way it should be but unfortunately the thyroid system is in a mess and most doctors are poorly educated). If you have a stack of symptoms, get your blood test results and post them on the Thyroid UK Healthunlocked site and there are many lovely and highly knowledgeable people on there who can comment and give you advice.

  • I am on the same both DiamondFire. I have just joined this site and found your post. I am with thyroid uk forum too.

    So I am hypothyroid and also have terrible gynaecological health problems with unbearable pains... hard to handle this all...

    Wish you recovery

    Exx

  • I have an underactive thyroid and am on meds for this. I also have excruciating period pain and in strange places which I am hoping will get better when I am on the right dose of thyroid meds. I have wondered about endometriosis and have a referral to discuss this with a gynae. My thyroid doc said that any part of your body can go wrong when your thyroid hormone levels are wrong e.g. levels of other hormones, oestrogen etc, so it could well be related.

    Many people who have the thyroid blood tests and are hypothyroid get missed because they fall within the 'normal range' as it is far too wide. Other countries have ranges which are much narrower than the UKs, and even they are too wide, but they show a lot more people to have 'abnormal' results and so more people get treated.

    In short - if your doc says you're not hypothyroid, don't take their word for it, you might still benefit from thyroid medication. Look into it yourself (sad and not the way it should be but unfortunately the thyroid system is in a mess and most doctors are poorly educated). If you have a stack of symptoms, get your blood test results and post them on the Thyroid UK Healthunlocked site and there are many lovely and highly knowledgeable people on there who can comment and give you advice.

  • I should add, if thyroid turns out to be the cause of endo for some people, it may not be the cause in others. Just one of many possible scenarios. Also, I am not a doc and these are just my own opinions,

  • I've had thyroid problems since I was 17, it was extremely overactive and I've had various treatments for it over the years. I had problems with my periods since I was about 12 so who knows how long I've actually had endo, even though I've only just been diagnosed. As others have said, there isn't anything conclusive although some people think endo is an auto-immune disease, which is what hypo/hyperthyroidism is. My gynae mentioned this to me briefly but that was it. I think they would only test for thyroid issues if you had the symptoms, which is fair enough.

  • Hi

    I am always one to think what causes something n not just throw tablets at things.

    My husband has IBS apparently and has been on various meds none have helped his symptoms and never had the dr thought of of causes. Won't refer to dietician and hasn't thought that he is such a worrier, he over thinks everything and is constantly think of when he might need the toilet etc all that can't help. Anyway getting bk to the question I have an under active thyroid. Been on meds about 5/6 yrs and it was doubled in dose about 3 yrs ago, If I was look really look bk I could say my probs have git worse since but hard to say. Tend to have stuck in my head most drs thoughts ... It's either your age or your weight. So if they came up with meds for reducing your age/weight how happy would most of us be. Stupid I know but on Decapeptyl at the mo, 2nd inj in about 10 days so not feeling the best physically or mentally at the moment.

  • Thank you all for your comments - apologies for such a late response, just discovered the emails saying I had responses were sitting in 'spam mail!' I hadn't expected so many responses!

    I haven't yet received a response from my specialist although have had a couple of missed calls from her while I've been working and left a message with her secretary for her to put her response in writing (the reason why I wrote to her in the first place!) so will keep you all posted when I do eventually get a response, hopefully next week!

    I do recall having blood tests around the time the Drs were trying to find the diagnosis although wasn't told what these were testing for and the outcome other than that they were 'normal.'

    The mirena has eventually settled down so I'm feeling a lot better in myself than I did when I asked the initial question - just seems as though endo sufferers are treated like guinea pigs at times and that the cause of the problem is never investigated/addressed, just the symptoms with trial and error!

    PS Thanks especially to JoJo777 for explaining the hormone treatments - explained much better than any Dr I've seen! :o)

    xx

  • Hi again all,

    Have finally had a response from my specialist who has outruled any thyroid tests being carried out to get to the route cause of endometriosis (was worth a try I guess!)

    I'm now applying sandrena gel daily to provide the oestrogen arm of the HRT and taking calcium/vitamin D3 tablets in an attempt to protect my bones from the menopausal effects the Zoladex injections have caused.

    Melissa x

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