I have had endometriosis since I was 15 but it wasnt diagnosed until I was 38! I had the usual excuses - its normal period pain,/painful sex - just relax and have a glass of wine/its in your head. Then it was only diagnosed thanks to a sympathetic consultant who told me without even examining me that he believed it was endometriosis and following a laparoscopy this was confirmed. As a result I under went IVF and thankfully have a beautiful child born in 2004. After the birth I felt so much better - hardly any pain, However since 2009 I have had horrendous period pain and during much of the month,
I have had the most horrendous time with gynacologists apart from the guy that did my laparoscopy. This includes a woman who told me that endo is over diagnosed and that painful sex can be cured by a glass of wine. As a result of some really traumatic internal exams I developed a real fear of hospitals and doctors even my own GP! I have quite often cancelled at the last minute.
However earlier this year I couldnt cope with the pain any longer and finally saw my GP who given my symtoms refered me straight away, To cut a long story short it has been an exceptionally difficult time visiting hospital again although the new consultant was very kind. He didnt examined me either because he was convinced it was endo again. After the laparoscopy he told me that he had removed the endo from my rectum but that I also had adenomyosis.
I have to go and see him again in November to discuss the way forward. Does anyone have any suggestions as to the type of questions I should be asking? I know that sometimes a col is suggested but I would be unable to tolerate its insertion. Is a hysterectomy the best option?