Finally got my consultation today and it was surprisingly helpful. Considering it was this gynea consultants first day and I was his first patient lol!
I went in with a list of symptoms, what drugs I'd tried, my reaction to said drugs etc....very prepared I was! He read my list of symptoms, then read I'd had most of them since I started my periods aged 10. He felt really bad for me, he said he was a year older than me and couldn't even begin to imagine how horrible it must have been to live with chronic pain for 2/3rds of my life. I'd never thought of it like that before.
He showed me all my notes and what they'd seen in my laps (it really is a strange experience seeing your own insides in a photo). He said they'd only ever found a small patch of endo (not what I was told) and some scarring. He then said as norethisterone has helped my symptoms so much he is convinced I have adenomyosis.
He has agreed that I can take them for 6 months at a time and only have two periods a year until I'm at an age where I can have a hysterectomy.
I nearly burst into tears with relief. To be believed and be told that it's not in my head and actually receive some kind of sympathy from a consultant felt amazing. He's written to my gp telling him what he thinks and asking him to keep an eye on my bone density as the norethisterone can decrease it. With my HMS on top that could be nasty. He is also asking my gp to refer me to a pain management clinic, something I've never been offered before and have wanted.
The simple fact that I can tell people what's wrong with me now rather than "I have lady issues" is the best feeling in the world and now I've found something that really helps me I feel I can actually plan stuff and get my life back....or starting my life really.
Hope you ladies are having a pain free day