What to ask/request from a private doctor?

Hey ladies

I hope you're not in too much pain tonight.

So a bit about me if you don't know already, I had been in pain- painful sex, heavy painful periods, excruciating smear tests etc for years so my gp finally referred me to the hospital. I had a scan & ultrasound and she said i had a fibroid but they didnt affect people til they were 10cm big so she sent me away.

Finally after a year of fighting with the dr that i still wasnt right, how could i be when they hadnt done anything! i was diagnosed with endo, I had a laparoscopy and it was removed with heat.

The pain was still there so I had a colonoscopy (it came back normal)

My doctor said the only other option was a hysterectomy, erm no thank you!!!!

so, after almost a year of trying different options- the coil (OUCH!) different meds, the pill, acupuncture, Chinese herbs, the endo diet etc I was referred to another hospital where I had another laparoscopy. The vile surgeon didn't even bother coming to see me afterwards and left it to a slightly less vile nurse to tell me that there was nothing there and it's probably just IBS and that I could get dressed and go home and carry on as normal, Charming!

So back I went to my GP (also vile) who pretty much said get over it, get on with your life, there's nothing more we can do for you.

So after a year of saving up I have decided to go private.

I have an appointment on Thursday with a gynaecologist as im sure its not ibs. but my question is, what should i say, what tests I should ask to be done? All I really want from her is a diagnosis and a treatment plan. Should I take any notes etc. I don't want to waste time or have to have more appointments because I didn't ask/tell her the right things.

Please help if you can.

Lots of love

Hayley xx

5 Replies

  • Hey, what an adventure you had! And believe me most of us have similar "horror" stories with wrong diagnosis, arrogant doctors and clueless staff.

    Anyway, endo cannot be shown usually in scans, I had CT, MRI and ultrasound and came back normal but during the lap they found endo. As for your latest lap that came back clear...oh well this is what they were telling me too, after my first lap I was still in pain and they were saying to me that everything is cleaned and it is in your head (how typical)

    And when I went for second and third opinion, I was told that dome endo was left untreated (and because of the first doctor I have to go under the knife again!) :/

    As for the fibroids, you have to mention that to the new doctor and he will tell you what you need to do. Make sure you tell him your history of painful intercourse, periods etc...everything!!!

    And I would suggest that you the new doctor is an endo-fibroid specialist.

    Good luck :)

    Jo x

  • Hi

    I switched to private as well and it was the best decision I made, I was lucky that I had private cover in the end. I found that I didn't even have to ask for anything, it was a much more professional and positive experience than nhs and all elements of needing to fight disappeared. I was lucky that I managed to book a lap with the private gynae before I even met him (I was already booked in on the nhs list) so the first consultation was really just so I'd met him before the surgery but he still spent a good 30mins with me at least going through absolutely everything. Even if the lap hadn't already been booked I'm pretty sure thats what the he would have recommended without me needing to ask for it as he completely disagreed with the notes on my file just from reading them and was not happy with the nhs gynae (who is at the same hospital!).

    You need to tell them absolutely everything, however small, so they have a full picture. If they suspect its endo, as I'm sure you know, only a lap can confirm it and its really not unusual for it not to be picked up on a first lap as it could be hiding and a tiny amount can cause a lot of pain, so I would think that it's a real possibility you could be looking at another lap. I found that private gynae's often want to do ultrasound scans during the consultations, so they may offer that without you even needing to ask, which I found is better than being sent away for a separate scan appointment as they deal with the results then and there.

    I hope the appointment goes well x

  • Yes I agree with hayls, I switched to private as well, and things are much easier now.

    With private healthcare it is so easy if you think you dont like a doctor etc you can always be referred and go straight away to a better one. And things can be done very quickly.

    I was only one month in pain when I had the lap and I was diagnosed with endo. If it was NHS it would take at least a year! x

  • Hi Hayley,

    I was also told by my first gynae consultant that I was in such a mess my only hope was a hysterectomy - I felt like you - that I did not want one. She was a private consultant. It turns out that, although she had advertised as treating endo, hysterectomies are really her 'thing' - it is what she knows. best how to do. You do have to watch for that. Unless it is what you have decided is the best course of action for you.

    I did my own research and found an endo surgeon and, as I have extensive endo with my internal organs stuck out of place, I had total radical excision surgery. This is where the whole lining of your peritonium is stripped out and it removes all seen and unseen endo and separated your organs that may have become adhered. It sounds gruesome but it wasnt really and was all done keyhole. The most difficult part is having a long anaesthetic.

    I have to say, that was some 21 months ago and I have been pain free ever since. It achieved the result of putting me back in the position (well as close as possible) that I was in before endo took over my innards.

    It allowed me to avoided enforced menopause with drugs, avoided a hysterectomy and avoided losing my ovaries, which is pretty important as, even once you have gone into menopause they provide certain hormones that help to protect your bones and your circulatory system (hence they give you HRT if you have them removed!).

    The other thing about a hysterectomy is that it will only help if you have adenomyosis (endo in the muscles of the uterus as opposed to just on the outside) . . . and even then, only if you ONLY have adenonyosis. The thing with adeno too is that it cannot be confirmed prior to hysterectomy, only suspected by a bulky womb. My womb was bulky but I have not had any problems since radical excision so, even if I do have it, it wasnt what was causing the worst of my pain. If you have endo anywhere else in your tummy and you have a hysterectomy, you will still have endo. It has to be removed at the same time by excision.

    You need a surgeon who can remove the endo. Laser is burning off the surface but it can leave unseen endo at a deeper level, to possibly resurface in the future. Excision cuts endo away and at the deeper level. However, patch excision which a lot of surgeons do, is ok if you ONLY have patches of endo - it will not be effective against widespread endo.

    Therefore, the treatment that you go for should be in accordance with how widespread your endo is or isnt. It helps to be well informed before you meet your consultant and it is important to know the extent of their expertise as this is what you will be offered.

    I hope your appointment goes well and that you will soon get the help you need to lead as pain free a life as possible which is what everyone deserves.

    All very best wishes

  • Thanks ladies, ill let you know how it goes xx

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