Endometriosis UK
34,657 members30,912 posts

Endometriosis and Me..... HOPE

Being diagnosed with endometriosis is just half of the battle, it's the overcoming the dismay of knowing that although it is treatable, it isn't curable.

I was diagnosed in July, unfortunately once being diagnosed with the disease I then went on to find out that it takes on average 7.5 years from the first symptom to diagnosis. My theory as to why it takes too long is; the contraceptive pill although effective ,in contraception, it is also a form of HRT which can help suppress the symptoms of endometriosis - studies have shown that this is the most popular form of contraception amongst women ranging from 16 to 25; and the unknown, until recently I didn't know that we understand so little about the disease especially as to why this happens to on 10% of women of reproductive age and how the medical profession take to long into coming to a diagnosis.

I am now a strong believer in hope, hope for a cure and hope that we can make the public and medical profession more aware of what Endometriosis is about and our battle against time..

4 Replies
oldestnewest

It took 17 years for my diagnosis!!!

Reply

All my symptoms started when I was about 12 and I had to wait till November 2011 to find out what I had I was 20.

I have now turned 21 and I have lost all hope that I will feel better and not be in pain any more, I have a great boyfriend who tries his best but I sit there thinking if you knew what kind of pain I was you would not be looking like you do, you would be sat there thinking god either kill me or make me better and out of this pain even for a day.

I hope you keep your hope that is one thing I wish I had.

If you want to talk message me.

Kind Regards

Emma-Jane

Reply

Thank you for sharing. Creating awareness is vital to endometriosis as it's often overlooked and, due to not being a terminal illness, under funded. Synthetic hormones ie, HRT and the pill have a lot to answer for! Hope you're having a pain free day x

Reply

:) Never give up hope, I love the positive attitude. After being diagnosed last year with endo during lap and cyst drainage I feared I would never conceive naturally as nearly all the endo I have/had found in my right ovary. Also being diagnosed with unicornate uterus I thought the worst, it is so important to preserve the one ovary and tube that I have. Kept positive though and after treatment and looking after myself well, I conceived naturally in New Year and now 5 days away from my due date! :D

Reply

You may also like...