Return on pain 5/6 months into Zoladex - Endometriosis UK

Endometriosis UK

70,118 members51,936 posts

Return on pain 5/6 months into Zoladex

Noggsy profile image
5 Replies

Has anyone experienced their shooting pains coming back after 5 or 6 months of being on Zoladex? I am starting to get a particular one I used to have before starting Zoladex, and it has come on quite fast - most of today. I do have other pain come back (but not as bad) just before then next injection is due - but this is due to the Zoladex wearing off.

Any ideas or help greatly appreciated.

Thanks x

Written by
Noggsy profile image
Noggsy
To view profiles and participate in discussions please or .
Read more about...
5 Replies
learidd profile image
learidd

I know the zoladax the maximum you can have it for is 6 months perhaps this is why ?

FaithBoo profile image
FaithBoo

I was on Zoladex for 4 months and stopped just before I was due to have shot number 5. I noticed that the pain did get worse towards the end of each month while I was on it but the pain got progressively worse each time until it started becoming the same as before I had my last surgery in Feb. My gyn thinks that it wasn't doing enough to slow down the endo and that my bowel adhesions have regrown. She stopped the zolly because if it's not helping enough there's no point dealing with all the horrible side effects. So I'm back on the pill and gabapentin until I can have excision surgery with a specialist in Oct.

So it could be that the Zoladex isn't full working and your endo is still growing or you may have adhesions which tighten over time and do cause the kind of sharp pain you're describing. Zoladex cannot stop/slow adhesions from growing.

Hope this helps! xx

Noggsy profile image
Noggsy in reply to FaithBoo

Thanks for this - I did wonder if it maybe adhesions. I danced for 1.5 hours (concert saturday) so maybe retrobution for enjoying myself?! xxx

FaithBoo profile image
FaithBoo in reply to Noggsy

You are NOT allowed to enjoy yourself EVER!! You have endometriosis!! Lol ;)

Noggsy profile image
Noggsy in reply to FaithBoo

Hee, hee - shame on me! Summer Ball this saturday - god help me! x

You may also like...

Pain has returned 1 month after lap :(

just over a month, and my pain has returned :( About two weeks after my surgery, I started to feel...

pain whilst on zoladex

regarding zoladex, I have been using it for the last 9 months for my severe endo but for the last...

endo returns after hysterectomy 6 months ago

hey just wondering if anyone has had a hysterectomy and endo return..I had a scan 5 days ago and I...

Has anyones Endometriosis pain returned 5 months after treatment

surgery back in September and already my pain/symptoms have returned. Has anyone else experienced...

Feeling nervous stopped zoladex & HRT 6 weeks ago and pains are coming back ++

symptoms wouldn’t come back for some time & I’m scared the whole year of settling on zoladex has...