Endo and lack of sex drive, is this common?

I have been diagnosed with Endo after 3 years of Dr's appointments and trying every treatment under the sun. I am now on the list for a hysterectomy sometime this year, at the age of 37. I have 3 kids, so I am lucky. But my husband and I are having a hard time dealing with the symptoms of Endo, mostly in the sexual department. He can handle the mood swings, me being tired, my anger, depression, and is understanding when I am in pain because he can see how it affects me. But he is really struggling with the fact that I do not want to have sex. It wouldn't be so hard for him if I felt like anything sexual, but I don't even want to be touched. When we do have sex, it's not painful, so I don't fear that. I just am not interested at all. I am just as frustrated as he is, I know how it has affected our relationship and it's not getting any easier. Am I normal? Is this something that others struggle with as well?

[lillystar]

Hi sorry to hear you are having problems, i know what you are going through as i also have the same issues at the moment, i have been diagnosed with endo and have had a couple of ops, i have no sex drive at all !! my relationship with my husband is really suffering as i don't even want a hug or any form of contact, im not sure why this is ? it does not hurt if i have sex i just don't want to, and i do love my husband, it puts a huge strain on our relationship, i don't feel very sexy ! maybe being in pain and suffering with mood swings and being so tiered mentally and physically is a part of the reason, i haven't spoken to my consultant about this, i feel like it is all my fault and feel guilty so i just keep ignoring it, maybe we should both seek some professional advice as it may be a hormonal thing, but i do know what you are going through so you are not alone, its horrible not being able to be close to the person you love dearly and to push them away, i hope you find some answers for this, and i will certainly try and get some help as-well, its not something i can ignore for much longer, try not to be to hard on yourself, with 3 children to look after and trying to battle with the endo its tough ! hope you find your way through this xx

[Hidden]

Hi. I know this is a very old post, but I'm wondering if you ever had any luck with your sex drive? I'm having a similar problem, but I'm only 22. Its ruining my relationship. Wondering if it's all hormonal or not. Really struggling!

Thanks!

[Six86 in reply to Hidden]

Hey, did you manage to get any help with this.. my partner is 23 and has the same issue. It's really difficult because i feel really unloved sometimes and feel like she isnt attracted to me. Nothing gets her in the mood. But i also dont want to bring it up.. but when there's been nothing physical in months it's hard not to say anything. I just want to help

[mandiegirl12 in reply to Six86]

Sex is super painful with endometriosis. I know this since I to suffer from endo. I get that you want a physical relationship but you also have to understand that her being intimate with you isn’t always pleasurable for her. Try understanding her disease research it, talk about it with her and try to find ways for you guys to be intimate. Endometriosis is awful, but it’s more awful for her than you. All I can say is communicate with her. You don’t have much of a relationship if you can’t talk about the important things.