I have stage 4 endo. I have had 2 laps now. The second had to be abandoned as the surgeons couldn’t access my ovaries to remove Endometriomas and any adhesions as my bowel was in the way and stuck to my right ovary and uterus. I have had an MRI since and the results are to be discussed at an MDT meeting with specialists to devise a plan for surgery. Ideally I would be having a hysterectomy but am 34 with no children. My consultant has already said there is a risk of damage to my bowel and I am absolutely terrified of this. I would rather remove all of my reproductive organs than any damage to bowel. All you ever see are horror stories so I am asking is there anyone who was in a similar situation who can give me positive hope? Thank you x
I'm 38 with no children. I had a hysterectomy and bowel shave 2 days ago. My consultant said it was complex surgery and my pelvis was full of adhesion, endometriomas stuck to ovary and adenmyosis. Originally he said that he may need to do a bowel resection, but they reassess the situation when they are in theatre. I'm ok at the moment with pain relief.
Everyone is different though and I understand how difficult this decision must be for people without children.
I'm happy with my decision and glad to now be on the road to recovery.
I hope you are ok and good luck with everything x
Hi, thank you for your reply. I completely understand your decision, although a tough one to make I’m sure but I hope this is the start of a much better life for you! I too have Adenomyosis. Part of me wants to just say, take it all away. I know it’s not a cure but surely it will make things a whole lot better.
I’m really pleased for you that you had no trauma to your bowel. I guess everyone’s fears are different but that is the main fear for me. Good luck with your recovery! X