Weak legs during a flare

[Hol2509]

Hi all. I'm currently waiting for a lap and on Cerazette until then. I've been on it for 4 months with no problems until now when bad flares have started to return. These involve brown discharge, pelvic pains and recently a feeling of weakness down both legs. This makes it difficult to walk and sometimes even get dressed.

Anyone else experience this and any advice to help my legs? I already have knee problems that can impact my mobility but this new weakness makes things worse!

[635703]

Hello 👋🏻 I get weak legs during flares and it’s so hard to pick up my legs with boots on, my groin hurts and this radiates all over my thighs to my knees.

I am having pelvic Physio soon and hope this can make a difference 💗

[Hol2509 in reply to 635703]

Glad I'm not alone, I hope physio helps you!

[635703 in reply to Hol2509]

Thanks. In 2006 I had a endometrioma cyst on my left ovary the size of a tangerine 🍊 this made me limp and drag my leg.

[Jasmin24]

Hi

I suffer from this too!

Before it only effected and weakened one leg, which effected tbe right side of my body, due to adverse reaction. Now I struggle with both, as the endo has progressed.

My right leg, feels paralysed, when the pain starts.

I have a walking aid provided by the hospital, but recently, any I had to get a wheelchair, due to the pain, is triggered by walking. Days like these make me feel useless, as I have to rely on family, to push me around. I feel

I have been having pelvic physio for the last 5 months to help strengthen my legs and ease the pelvic pain.

The physio I found doesn't take away my pain, but I it helped in terms of movement, and gentle stretches.

Everyone is different in terms of their pain.

Physio does sort of help. Maybe get a walking aid to help aid, but also think about how you move, when to rest. Find trigger points. Speak to your consultant or doctor.

This disease has pretty much destroyed my life. But I still have to remain positive.

I hope you find a solution that will help you

Take care 🙂

[Hol2509 in reply to Jasmin24]

Thanks for your reply and sorry to hear it impacts you so much. Its so strange, I have very muscular strong legs from years of strengthening after a ligament reconstruction and knee dislocations, but as soon as I flare its like my legs just switch off! I'll try stretching out as much as I can and see if pelvic physio exists near me