Pain!!!!! : So I have been having this pain... - Endometriosis UK

Endometriosis UK

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Pain!!!!!

Ell234 profile image

So I have been having this pain for months I have been prescribed pain killers for the pain very strong ones, the pain in my abdomen hurts it effecting me walking, anything my stomach swells and my body turns boiling and this pain comes on and off through each month but more around the time I am due on.. the pain is getting ridiculously intense to where I am in tears and even painkillers don’t work.. the doctors found cysts on my ovaries so we’re convinced it was pcos but it’s not as that’s been cleared, they now assuming it’s endometriosis

18 Replies

How old are you ell? Your symptoms sound like mine xx

Ell234 profile image
Ell234 in reply to Vps1980

21

Ell234 profile image
Ell234 in reply to Vps1980

What have you been diagnosed with?

Vps1980 profile image
Vps1980 in reply to Ell234

I’ve got numerous fibroids and gyno thinks endo xx

Ell234 profile image
Ell234 in reply to Vps1980

My doctor seems to think it’s endo they started me on the contraceptive pill? Apparently suppose help with pain

Vps1980 profile image
Vps1980 in reply to Ell234

I’ve been given the mini pill but I’m not taking it, I want more scans first, I’m speaking to the gp tomorrow xx

Ell234 profile image
Ell234 in reply to Vps1980

See I did start taking it but now there doing my bloods for everything there useless

Vps1980 profile image
Vps1980 in reply to Ell234

Tell me about it, ive had so many blood tests it’s unreal xx

Ell234 profile image
Ell234 in reply to Vps1980

Getting ridiculous I starting give up now it’s been that long

Vps1980 profile image
Vps1980 in reply to Ell234

It’s been 2 years for me and what’s worse is I came off codeine as neurologist said it’s making migraines worse xx

I'm so sorry you're going through this. It sounds very similar to my pain symptoms. Hot water bottles are an amazing and cheap pain relief. I always have some kind of heat pack near by. Have a look for YuYu bottles. xx

Vps1980 profile image
Vps1980 in reply to MissMarlene

Hot water bottles are great but not when your body is burning up xx

Ell234 profile image
Ell234 in reply to MissMarlene

See most of the time hot water bottles are worse, what have you been diagnosed with?

Hi,

I've had endo for years, been on and of treatment for it also. Currently 39 and still trying to conceive again 20 years on. 1 month ago I started to get severe right sided abdo pain which caused me difficulty walking and urinating. I've been going to the toilet more often since then to. My Dr tells me it's my endo progressing and although I had it on my bladder years ago , she thinks its now starting to irritate it. I'm on daily cocodamol ,naproxin,and take gabapentin too. My sciatic nerves are very irritated especially at night in bed. So much so I spend more time tossing and turning then sleeping. I have constant lower back pain too. On my period I start taking tramadol 2 days prior or I'm unable to function plus the naproxin and gabapentin. I was told to take a different neuropathic pain med (I forgot the name) it does not work as well for me. Also have pcos , a few cysts on each ovary,but they won't remove them as I've had several ops on them already and they are concerned it will affect their function.. it seems no natter what I do ,I'm in a catch 22 situation. So it's a life of psin meds. If the pain gets any worse ,I'll be back to drs to get something stronger. What painkillers are you taking?

Hi there. Sorry to hear you're going through all this. It might be worth checking out the Candida diet. I did it several years ago and whilst it didn't get rid of my endo pain, it did completely change the bloating and temperature issues, amongst other things. There are various candida questionnaires online that you could check through to see if it might help. I'd also recommend a tens machine in the meantime for your pain as an extra help. You can also ask to be referred to a pain clinic. I hope the pain abates for you and that you feel better soon. xx

Vps1980 profile image
Vps1980 in reply to Washington1

The low histamine diet is awesome xx

Washington1 profile image
Washington1 in reply to Vps1980

Thanks for the tip. I'd not heard of the histamine diet before, but am looking into it xx

Vps1980 profile image
Vps1980 in reply to Washington1

No worries xx

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