I'm a newbie to this space and definitely should have signed up many moons ago to connect, reach out and better inform myself. Still, here I am, finally!
I'm stage 4 (DIE) with multiple lesions, colo/rectal bowel involvement & a very unwelcome, large endometrioma. My story is worryingly similar to so many with years of medical dismissal for "period pain". A year ago, I left the GP surgery in tears as I was legitimately told I was "wasting the NHS' time asking for another scan.. that my previous scan showed as "normal" with a 'functional cyst'.. I didn't need to be concerned as this will likely go away by itself .. and the pain I was experiencing was "normal" .. (*anger levels rocketing for my past self!*).
I hit my edge with chronic/ severe pain amidst the pandemic, debilitating pain, extreme fatigue, sickness and hours curled up in agony. Loved ones rallied around me and afforded me to go to a private clinic for a diagnostic scan. This felt like the final plea. The diagnostic report I got from that private appointment was the best and worst bit of paper - I finally felt validated. I had a huge wave of guilt, being helped to even be able to get help to see a private specialist, when for so many this wouldn't be an option financially. An exhausting amount of self advocating to get to this point and without the financial help of others I might still be believing that my pain was "normal"..
I'm currently on the 6 week countdown to surgery within the NHS after a very long wait. It can't come soon enough and I'm so grateful.
This is a fairly simple shout out for recommendations of multivits to prep my body as best I can. I already take vit D tablets but I'm aware that people with endo can suffer from other deficiencies. I want to help my body in the waiting - pre and post surgery - as best it can. Anyone have essentials as part of their toolkit that they use to help with inflammation, overall health with endo and healing post surgery?
Thanks for reading the brain dump and any vitamin/ supplement/ pre op prep tips welcome!