I know all here are suffering and I wish we could all be taken seriously.
I sent the email below to my surgeon's secretary today as I don't know what else to do. Does anyone have any suggestions. I can't keep on like this.
My hospital isn't even an endo centre and my surgeon just has 'a special interest in the case'.
I am writing today to ask if my case can be triaged again.
I was referred to Mr Ross after a trip to A & E resulted in me being admitted and the subsequent discovery of endometriosis, adenomyosis and kissing ovaries with bilateral endometriomas.
I have spoken with you before and you advised me that Mr Ross had triaged me and decided to put me on the new patients list. The paperwork had been done and sent to the new patient booking department. When i called them to ask about timescales for an appointment they told me it would be 6 months before i could even see Mr Ross for a consultation.
I am totally aware of the immense pressure that the NHS is under, pre-dating and then exacerbated by covid, and i am trying to add less, not more.
Since my admittance to hospital my health has been progressively been getting worse, to the point where i am struggling, or sometimes completely unable to complete normal daily tasks. At the moment it is one of those times.
I have been in constant excruciating pain since Friday despite my regiment of painkillers. I cannot walk properly, sit properly, drive properly, prepare food or even go to the toilet properly.
I am screaming out when i go round corners, brake, accelerate, put my foot down too hard when walking or just when i am getting a contraction.
There is immense pain when there is movement within my bowels, i am struggling to empty them and when i do it feels like something inside is going to explode. My stools are also dark (although not black) and very much like tar. I am also having to empty my bladder much more frequently, and when i do it is painful and i have to rock backwards and forwards to try to empty it.
I am unable to keep my home clean and care for my two sons (13 yrs with autism and 7yrs) properly.
I am a teacher of young people aged 14-20 with special needs and had to spend the whole day at work yesterday sat leaning to the side on the chair at my desk, with a hot water bottle, regularly having to breathe through pain and unable to get up and move to help any of them properly.
I am unable to get an appointment with my doctor, and there is not much they could do anyway. I don't want to end up blocking A&E up again.
I have attached a photograph to show the size of the bloating in my abdomen now. Before i could be dropped off at work yesterday i had to go to buy something to wear as i had nothing that i could get on and most waistbands, even elastic, hurt me. It is getting to the point where i may need to buy maternity clothes. I cannot tell you how embarrassing and completely degrading that would be.
I cannot continue like this. I am not living, i am just existing and my family are suffering because of it.