Hey guys, me again. Long post incoming..
I had my first 'diagnostic laparoscopy' today 13th Aug and as stated in my previous post I was worried they wouldn't find anything because of being on the Prostap injection for 6 months and not having a flare up since November 2020 and period since May 2021. Now, I say period but it wasn't a true period like I would usually get. Sorry for TMI. 🙈 My flare ups come a week before my period, always as I keep a log of it all as asked by my gynae.
I had a completely different gynae doing the surgery to the one who has had me from the beginning.
So they found nothing from this Lap, I am completely heartbroken, as much as that is good news, it is bad news for me as I feel like I'm back to square 1 again. ☹ I'd waited nearly 18 months for this and have been in agony for about 5 year (that has been chronic pain).
I'm after some advice if possible please, has anyone had a similar situation to this? What did you do next? I feel like it's a kick to the gut. ☹
Hey lovely I’m so sorry to hear you’re struggling after your lap. I just wanted to reach out because I had my first lap exactly a year ago and the same happened with me, in that they told me no endo found despite all my symptoms and a family history. You say a different gynae did your surgery, do you know if they were a general gynae rather than an endo specialist? Xx
Dartmouth93 thank you lovely, I'm so sorry to hear the same happened to you too ☹ it is heart breaking isn't it. That's exactly what was said to me - the gynae asked if I had bowel movements in the morning before surgery (I said yes) she asked if it was normal - if I'm being honest I don't know what normal is but I know for definite my movements are never normal. She said after I'd woken up 'no endometriosis was found but your bowel was quite full, maybe that's causing you the pain' but I know it isn't that. ☹It just says on the discharge notes she was a specialist in gynaecology so I presume not. I think my next step is going to be see what my original gynae says and maybe find an endo specialist of my own or see if she can recommend anyone.
Thank you for your reply, I hope you are okay xx
Try Andrew Baxter at Thornbury Sheffield. He's amazing
Thank you very much! There doesn't seem to be many endo specialists by me (I live in Shrewsbury, Shropshire). I didn't even know where to start so thank you for the recommendation 😊