Hey all,
Bit of a random question but I am intrigued so thought I'd ask.
We all know there seems to be an issue with understanding of endometriosis within the medical profession, sometimes the responses are uneducated, or they're down right derogatory/dismissive.
Can I ask:
- Do you challenge uneducated/dismissive/derogatory comments from doctors?
- If so, does it make a difference whether they're a GP or part of the gynaecologist's team?
- if you don't challenge doctors, what stops you from doing so?
Would be interesting to know what stage you're at e.g diagnosed or not, if diagnosed, for how long?
Best wishes
Hi,
Love this post it’s a great topic to discuss...
I’m a super polite lady but,this disease has been utterly relentless as it has for so many...
It took me 32years to gain a diagnosis and since 2017 I’ve had 3 surgeries and about to have another.
I absolutely challenge both GP’s,nurses consultants you name it!Always with that charm but,always armed with facts to support my thoughts!
I find it particularly distressing when a GP questions why I’d be suffering with the disease when I have no ovaries!!It’s my personal gripe forgive me...it’s happened twice in the last month!
Fortunately I have a cracking consultant now but, he took some finding...
I am not afraid anymore this is my body and it’s been through hell...in a way challenging what I am told gives me strength when I feel so out of control!
I have offered to support my GP practice with any information they need with regards the disease and also how it affects us....I feel there is so much education required and hopefully change is coming..
My heart goes out to all of us for how much we have to suffer...
Never be afraid to seek a second,third or even fourth opinion until it feels right...it may just be worth it...
Thanks for allowing me to rant!
Best wishes and if you need any support just say the word
Clare x
Wow, 32 years. I can't imagine what that was like.
But on a positive note I'm so glad to hear your gynaecologist is a gem. Hope the next op goes well.
Can't blame you for being annoyed about that. Endo can create its own eastrogen afterall. My pet hate is being told my bowel issues are nothing to do with endo (even though I have bowel endo that's gone all the way through), it's IBS, of course!!
I'm the same as you, happy to challenge any doctors- GP to consultant level. Mostly also with charm (and knowledge). Ultimately knowledge is power! But if I need to wipe the floor with them I do!
Take care
I also meant to say thank you for the offer for support. Always happy to reciprocate. I have done a lot of research of natural things that help, if you're interested, feel free to send me a private message x