I’m new to this, however I wanted a little bit of advice!
I was diagnosed with endo in 2019 had x2 surgery’s now and waiting on my third ( which had been delayed, due to covid)
However, I have been in so much pain recently to the point it’s running down my legs and I can’t walk properly, I have prescribed co-codomal, naproxen & tramadol in which none of them are touching the pain at the minute!
I have been in two minds to go to a&e but feel like I’m wasting time!
Has anyone been in my situation and been dealt with at the hospital.
Thank you in advance x
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Michaela08
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It’s horrible when it’s that bad. Do go to A&E if you feel you should, at least they can rule out anything urgent, no one can guess what’s going on.
I went a couple of weeks back, wanted intravenous painkillers as just sick of the constant pain. It was a bit of a battle initially, didn’t get intravenous, had diclofenac and stayed overnight for CT scan. Had the usual meds which included Oramorph. I did end up seeing someone from the pain clinic who sorted a call back from the pain consultant. If you aren’t under the pain clinic it might help to speak to someone. I’d gone to A&E last year and that initiated the pain clinic involvement, they said GP had to do referral but I did see the pain nurse.
GP screwed up referral so had to sort that as well.
How are you at the moment?That’s great you’ve got a referral, you can ring them to get a timeline, if you explain the difficulties they may speed it up.
I started with Tramadol, consultant added Amitriptyline and a couple of weeks ago Pregabalin. Nothing really hits home, they say it’s nerve damage, I think adhesions are still there so battling with hospital.
I ended up going to A&E yesterday, which I was asked by the sister on duty “what do you want me to do about it” it was almost the second I mentioned endo I was dismissed straight away! How ever I was seen by a doctor who was lovely he gave me some morphine to ease the pain! Took my bloods which were all fine and he said to contact my consultant who’s based in Preston (I’m in Blackpool uk) to speed the surgery up.
I feel a little let down by some nhs workers and how they talk to people! But that’s another rant haha!
So I’m home now with my hot water bottle still in lost of pain!
Sometimes I’m just made to feel there is no help for us that suffer, it’s kind of like “well it’s a chronic illness, so deal with it” or is that just me 🙃
Anyway I’ll contact my consultant who is lovely and have a chat with him but hopefully my appointment for pain management comes through soon.
It’s not you, they act that way here as well. Had to be really firm the other week.Rant away 😂
Did they not give a prescription for Oramorph. Give 111 a call and tell them what you had yesterday and see what they say, or GP tomorrow. If you can speak to consultant even better as he can send a recommendation to GP, they rarely go against that.
I’ve had that reply the other week re chronic pain, not putting up with it, I will get proper answers 😀 even if it kills me 🤣
If they are reluctant due to it being an opiate, there are non opiate like Nefopam or diclofenac to suggest. A lot of GP’s get reluctant these days in case of dependency/addiction, if you are in pain it is far less likely this would happen and can be monitored.
So sorry to hear you're in so much pain. I have found that co-codamol does nothing for me. A certain percentage of the population doesn't have the enzyme to break down co-codamol so it may be that it does nothing for you too. I've seen mixed reports re naproxen on here. Some people it works for, some it doesn't. I've been using an orodispersible form of Tramadol for some time now and find this one of the most helpful meds. I was given orodispersible as I'd just throw up the pills, but they work a bit differently to the pills as they go straight into your blood stream, instead of going through being digested by the stomach first. This might be worth trying? I also discovered that I wasn't taking the pills soon enough. That is, I'd wait until I was in significant pain before taking the tablets, but after years discovered that's not how they work. I've been told to take the tablets at the first sign of pain and that's when the pain killers can help the most and it has certainly made a difference for me. The other pain killer that has helped has been diclofenac suppositories (voltarol). These were good for some pain relief, but I eventually developed breathing side effects so have stopped taking them, but might be worth trying for you. I have been to A & E several times, when I was in so much pain, I felt like I was passing out. I'd usually be on the floor throwing up, looking grey apparently and blood pressure very low. I found in that situation, that paramedics were indeed life savers and NHS staff usually brilliant at helping. I used to have gas and air until I discovered you shouldn't have too much of it and have been given morphine several times. Anyway, eventually got the meds a bit more sorted. I can still end up in agony, but at least it's not horrific most of the time any more. I would say if you're in two minds about A&E, I'm not sure it's the answer. For me, A&E has been for when I'm literally not coping. Your best bet, is asking for an appointment with the Pain Management team. And also have you got a tens machine? I used the Ova tens. It doesn't take all the pain by any means and sometimes seems to do nothing, but I have found it can be helpful in taking the edge off. I'm so sorry you're having a rough time and hope that you will find some relief soon. Another thing I've mentioned to several people on here, is have you looked at what you're eating and drinking. It really is worth keeping a diary for a few months to see if there are any triggers that make it worse. I found that any more than 3 cups of green tea in a month could put me in a very bad way. My niece had the same experience. Anyway, sorry for such a long reply, but hope some of it can be of some help.
Glad to have helped in some way. You can get an Ova tens machine on amazon.co.uk. It's bright pink at the moment and comes from tenscare.co.uk, but tens care have them selling for £42 on their site, whilst the same device is £29.99 on Amazon. There are other tens machines available, but some are very expensive. I've found the Ova tens does help at times. In fact I've got it on now and it's definitely helping today. Hope you get all the help you need. Stay safe X
When I went to a&e in agony , they didn't help manage my pain at all. They just said come back if the pain is unmanageable and I told them the whole reason I went in in the first place was because it was unmanageable. Honestly I already hated a&e now I won't go at all.
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