Endometriosis and dyspareunia (painful intercourse)

[amziella]

I have mild endometriosis symptoms except from painful intercourse. Had laparoscopy surgery 6 months ago which I was told would cure the deep pain I was feeling however I still feel the same during sex and starting to wonder if I've been misdiagnosed. Anyone else gone through the same thing?

[Hidden]

Hi, I still have painful intercourse and I have had the surgery, my gyno said it could be from all the scar tissue that is still there. To be honest with you I haven’t had much hope with easing the symptoms of painful intercourse I still have it and have had it all my life. Sorry to be a downer and not much help just wanted you to know your not alone x

[amziella in reply to Hidden]

Thank you so much for your reply. No, not being a downer at all. Its actually good to hear real stories rather than me endlessly googling and hoping I find an answer. I was told Visanne would help as well. Tried it and my skin was horrendous and didn't ease any pain at all. Its so strange as I have extremely mild symptoms but this is the only thing that really bothers me its so frustrating! Completely lost all libido as a result.

[KDA0510]

Hi Amziella, I’ve had two laps - the last was in 2017 and quite major surgery to excise deep infiltrating Endo. It took me a long time to accept painful sex was going to be my norm. I have managed to find positions that work for me that cause the least pain/pressure and found that a good lubricant goes a long way. My sex life will never be as it was before but a very understanding husband and some practise on what works for us has really helped. Best of luck xx

[amziella in reply to KDA0510]

I'm beginning to think the same, I'm just going to have to find a way to deal with it. However, as a result of the pain I have almost zero libido which is probably the most worrying thing as a 28 year old! Thank you for your reply x

[Techpig]

Hi, I had the same thing and I have grown to accept it will always be a part of it. It got to a point where I was completely unable to have any sex for a good year. Luckily I also had a supportive bf.

I can completely relate to your loss of libido I've also has this since being around 25!

Due to the deep pain I also developed anxiety around sex which caused me to have much worse superficial pain. I was referred to a sexual pyschotherapist which really helped. She suggested regular massage around the superficial pain to build my confidence and also using lidocaine to take away the superficial pain build my confidence.

If you have deep pain she also suggested a sex aid called the onut. This is for the man to wear and changes the depth of penetration which helps with the deep endo pain and but still feels good for him.

Don't lose faith there is lots to try it's just a little different. Recently I fell pregnant which has helped all my symptoms subside which is something I never thought would be possible due to me being completely unable to have sex.

Also a lot of doctors will just fob you off as something to accept - but ask for a referral it's changed our lives as a couple.

[Noodle1984]

One thing I highly recommend is finding a physiotherapist who specializes in Endo / pelvic pain. They can give you all sorts of exercises and tips for treating painful intercourse, penetration pain, incontinence, pelvic floor dysfunction, etc.

[Afrohair]

Misdiagnosed in what way?surgery can cause more problems it's not always a cure we're you not informed this ?do you think this is something else ?just so you know pain from deep within the vagina is usually nodules in the vagina if those nodules weren't treated they may have got worse or come back x