Information Please: Hello everyone I’m... - Endometriosis UK

Endometriosis UK

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Information Please

Love_Yellow profile image
24 Replies

Hello everyone

I’m currently on the waiting list for my second Lap within a year.

Due to Covid please can someone inform me if none emergency Operations have been put on hold? Xx

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Love_Yellow profile image
Love_Yellow
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24 Replies
Moon_maiden profile image
Moon_maiden

I very much hope not! I’m waiting for date for second op as well, secretary last week said she’d get back to me this week.

I really don’t think they could do it again. For me this is getting to be more emergency than not

I hope you hear soon and all goes well. 🙂

Love_Yellow profile image
Love_Yellow in reply to Moon_maiden

Thank you for replying. This is becoming harder everyday for me to deal with as my symptoms are progressing.

Form the result of my MRI my bowel is stuck to my uterus again and endo in other places.

I feel for every signal female that suffers with this horrendous disease.

Keep strong and I hope you hear from your secretary🤞🏼💛 xx

Moon_maiden profile image
Moon_maiden in reply to Love_Yellow

I know that feeling 😫

Sorted out paperwork earlier, bending up and down has killed me. 10 ml Oramorph has done nothing.

Love_Yellow profile image
Love_Yellow in reply to Moon_maiden

Yeah I’m like that with my back to, I’m currently taking 60mg Codeine and Paracetamol and 5lm of Oramorph if that doesn’t help and sometimes at my worse that doesn’t help either. Xx

Moon_maiden profile image
Moon_maiden in reply to Love_Yellow

If I don’t move I’m fine 🤣. Best time is the few minutes after waking and getting up, I feel normal....

Love_Yellow profile image
Love_Yellow in reply to Moon_maiden

🤣 yeah I’m like that the more the day goes on the worse the pain. Xx

SunshineSylvan profile image
SunshineSylvan

I don’t think so - I think they’re trying to keep going as much as they can, provided cases aren’t rife in the hospital I guess. I’m on the ‘urgent’ list for my second lap and have been told it’s 3-6 month wait ‘subject to Covid’

Love_Yellow profile image
Love_Yellow in reply to SunshineSylvan

Thank you for your feed back.

I’ve been on the waiting list since August, they have been awaiting information from my last consultant because in my report it states that I have been fitted with stents but no follow up to have them removed🤔

I was hoping to have my Op before Xmas🤞🏼 I’m also on the cancellation list for short notice.

I hope you get sorted soon SunshineSylvan.

Take care. Xx

Lindle profile image
Lindle in reply to Love_Yellow

I assume you are under a specialist endo centre? Just be careful with cancellations as we are finding that admin at hospitals has sometimes been offering cancellations in secondary care with surgeons who wouldn't be suitably qualified. Be sure it would be a cancellation on the endo centre list.

Love_Yellow profile image
Love_Yellow in reply to Lindle

Hi Lindle

I am under a specialist endo centre and assigned to an endo specialist so everything should be okay hopefully. Thank you for the info💛😊 xx

Lindle profile image
Lindle in reply to Love_Yellow

Oh that is good. I hope you get treated soon. x

Love_Yellow profile image
Love_Yellow in reply to Lindle

Thank you😊💛 xx

ChloeL934 profile image
ChloeL934

Hey!

I think it depends on the area... I had a suspect cyst which needed an urgent MRI which I had done within 2 weeks, everything came back fine but was offered a date for surgery the same day I got the results & surgery was 9 days later. I hope you are not waiting too long & things go well xx

Love_Yellow profile image
Love_Yellow in reply to ChloeL934

Hello Chloe

Thank you for your reply. I hope your receiving well after your Op. finger crossed I hear something soon. Xx

KimPV profile image
KimPV

I’ve just got home from having a lap on Monday, I didn’t feel scared or worried about Covid in the slightest . It felt like a regular hospital stay really, they found a mass left behind from my hysterectomy which they think is ovarian remnant :(

No plans at the hospital to cancel any operations up and coming either or any emergency ones.

Kim x

Ps :Call them up every week, keep telling them you would do a cancellation and are you on the cancellation list, Make them rememe you name,

KimPV profile image
KimPV in reply to KimPV

Pps . I only waited from March for My waitng and surgery time total which is amazing for the nhs

annieorrell profile image
annieorrell

I’ve been waiting for my surgery since February and have been told it could be 41 weeks. I’m waiting for a full hysterectomy for adeno and endometriosis and also have bowel loops caused by adhesions and a large cyst . You do start to wonder what else is going wrong in there in the mean time!

Thecrazypugglelady profile image
Thecrazypugglelady in reply to annieorrell

That's so true they just dont get it!

Monti18 profile image
Monti18

I believe they have. I am also on the waiting list to have a third Laproscopy! I am taking pain killers to ease the pain and use my hot water bottle at night! Hard times but sadly we are not seen as a priority during this pandemic 😷

Sarahmae profile image
Sarahmae

I had my op a couple of weeks ago, they are apparently nearly back up to pre covid ops per day so hopefully shouldn't be too long xx

Love_Yellow profile image
Love_Yellow in reply to Sarahmae

Thank you. Fingers crossed it won’t be to long. Hope your recovering well💛 xx

It depends on where you live. I'm on local lockdown in Wales and I'm urgent list but only operating on cancer patients 😔 so back on hold. I've written to my MP as I've had enough covid or not I dont think they are getting the pain we deal with. Hopefully yours wont be though. I know some people are still having theirs in other areas of England.

Love_Yellow profile image
Love_Yellow in reply to Thecrazypugglelady

I’m so sorry to hear to are in so much pain and having to wait once again for you OP. You are definitely correct about them not understanding what is women with endometriosis have to go through on a day to day basis and have I affects us.

I really do hope you get sorted soon. Thank you so much for your feed back💛 xx

CircusChelle profile image
CircusChelle

Hi, they are still doing these ops at the moment.

I have my first exploratory laparoscapy on Wednesday which has been arranged since the whole Covid situation. Fingers crossed that you will get an apt through soon!

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