Desogestral questions : I’ve been put on... - Endometriosis UK

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Desogestral questions

Staa profile image
Staa
14 Replies

I’ve been put on the progesterone only pill to prevent endometriosis to come back or get worse. But I’m not clear on how it is supposed to help? Still bleeding and have heard that it doesn’t stop the scarring. I’m just thinking now what’s the point of taking it, if it doesn’t stop the scarring? Does anyone have any views or answers?

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Staa profile image
Staa
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14 Replies
Apatche4 profile image
Apatche4

This made my pain worse and my hormones were awful was so angry all the time. I stopped taking it.

Staa profile image
Staa in reply to Apatche4

Thanks for responding it just seems like a weird one. And a lot of reviews are saying similar things

JoBTW74 profile image
JoBTW74

Hi Staa

It has helped with with the pain and has made my periods less heavy.

I think different people have different results, apparently stops periods all together for some. I take a double dose back to back.

It has certainly made my endo bearable which it was not before. I have stage 4 and frozen pelvis.

I would say its worth giving it a try for 6 months and if it doesn’t help then stop taking it.

Jo x

Staa profile image
Staa in reply to JoBTW74

Thank you Jo, I was told that it will stop the periods completely so that the process of endo would be reduced. But if I’m still bleed just doesn’t make sense at all.

JoBTW74 profile image
JoBTW74 in reply to Staa

I think it does for some people x

Moon_maiden profile image
Moon_maiden

I tried this from December to lap in Feb, didn’t help with pain much, but did with emotions. I hadn’t been diagnosed at that point, consultant said to stay on it. I think it helps reduce/balance oestrogen.

Harper_endolife profile image
Harper_endolife

Hi! I have been on the POP for nearly 15years to control endo and it really helped me. I would stick at it for a while for it to get in your system. I didn’t have a period for the whole time I was on it and when I had a scan recently the endo had suppressed :)

Nikilll profile image
Nikilll in reply to Harper_endolife

I'm also taken that progesterone only pill. But experience was worst.age was 24 and I did laparoscopic surgery.Note: im virgin. My questions is what is your age? You are married or unmarried? What is your weight?. You did any surgery for endo?. Please answer my questions. Thank to you

Afrohair profile image
Afrohair

Didn’t help me pain worse wouldn’t wait 6 months .2 maximum to see if bleeding stops my endo grew faster

Staa profile image
Staa in reply to Afrohair

Thank you! How did you find out if your endo grew faster? Did you have to go for surgery again?

Afrohair profile image
Afrohair in reply to Staa

No I could feel it my endo is just under the skin and not deep infiltered

Nikilll profile image
Nikilll

My experience was worst to used this progesterone only pill and high price also. Spotting and bleeding for 14 or 15 days. Very depressed.2 tablet for per day night and morning. I'm taken same time every day.every day abdominal pain and abdominal movement in uterus area.when I sit in sofa pain started. So discontinued from that pill. Now using combination pill. Note: I'm virgin and 24 year old.i did laparoscopic surgery also.my questions: your age?. You did surgery for endo?. You are married or unmarried (virgin)? Please answer my questions. Thank you

ali45 profile image
ali45

Hi there, I am just wondering if any of you had spotting everyday before you tried the mini pill? I've had spotting every day for a month, worse on a morning and usually always something there when wiping 😟 I was.told I needed a hysterectomy 7 year ago with severe endo, I have controlled very well with diet until a few month ago when I start eating wheat again and I got the unbearable pain to the point I nearly passed out, I have had the spotting since then, Im also 49 and in perimenapause. X

CArolGrace profile image
CArolGrace

I had issues with many mini pills causing issues a number of years ago but 2 years ago I was in to much pain during my period to not re consider . Two years on i was asked to increase my dose to 2 per day and it has helped massively with the period symptoms. I didn’t notice the bad experiences I had had before but this could also be because I now took a different brand to previous years . It took about 4 cycles for my period to stop and although I still get daily cramps and back pain - it has massively helped with the crippling pain I had during my period and even during ovulation. Docs always say give it chance and in this instance they were correct for me anyway. I didn’t have many options at that stage so am glad it helped for periods at least. I also think it acts differently in your mentality depending on age I am 38.

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