Hi I'm really hoping somebody can help me.
I am week 2 into prostap and I feel absolutely terrible.
The tiredness is my main problem, I feel so heavy and weak, I'm finding it so hard to do simple tasks, also flu like symptoms.
Does anyone know if I can take anything to give me more energy, would any over the counter vitamins help?
I really dont want to give up prostap but i dont think i can manage 6 months of feeling like this.
Any advice would be so welcome.
Thankyou Lindle, I'm not taking any HRT at the moment, do you think it would help with these symptoms or should I try to get through it?
I'm 42
Thankyou, I think I will ask for it, I noticed on my prescription that it said to be prescribed if needed for hot flushes.
They dont seem to be a problem at the moment, it's just the other things.
I hope this isn't too much information but my breasts are very painful too.
Yes it has, thankyou for your info, its helped me alot.
I just need to pick up a bit.
Just a little update, I have been to my doctors this morning and been prescribed a medication called kliovance 1mg.
I'm hoping this helps me x
I had that hrt with the prostap as the injection made me unbearably unwell. It made the Endometriosis so much worse with the flare up and the HRT helped the symptoms thankfully but if I was even 20 minutes late in taking it I had horrific sweats the next day so always best to have it at the same time. For me it was 7pm. Unfortunately the prostap didn't ease my pain and the menopause made it worse for me. After my laparoscopy I came off it but am still struggling now. Fingers crossed it works for you x
Thankyou Lovepenguins, I'm really hoping it makes a difference, I dont think I have ever felt so unwell.
I'm sad to hear that it didnt work for you.
Will you be getting anymore treatment?
Are you still struggling with the side effects off prostap?
I hope you dont mind me asking x
Aww thankyou not at all I still have sore joints and sweats but I'm now on mirena and I have tried to avoid it for 20yrs but I'm running out of options. They put me on pre gablin yesterday which is scary but just need something to work. I really would recommend HRT but it does have side effects and risks so definitely speak to your gp or gynae. Really hope it works for you xx
This is amazing, it contains all vitamins and minerals needed for endo: amazon.co.uk/Pregnacare-Vit...
Please make some dietary and lifestyle changes, sleep at least 9 to 11 hours per night, spend time outdoors, get your thyroid checked out and your vitamin D levels tested
Thanks StefaniaJW , I appreciate your response, I'm thinking of taking some vitamins to try and help these side effects.
I hope they are ok to take along side prostap.
Yes, but I am sorry you have to take this awful drug 
Hi Peoni!
How are you feeling now? I am having 4 months injections to try and shrink massive 13cm fibroids but day 6 and now I am exhausted. I was before as get up super early for work and have a long journey on train etc, but now with collarbone pain and tiredness i feel worse.
I cant take HRT as stripping the hormones should help shrink the fibroids before operation to remove them, but at the same time I am going from fibroids side effects which make me ill, tired and exacerbated my migraines (although my surgeon denies all of this!) to injection side effects.
Luckily my contract at my temp hob comes to an end 17th Dec, but I am barely making it in to work this week. I have saved enough to survive, money for a home, I didnt want to use, but cant feel like this at work!
What side effects and almost instant ones have others experienced? We cannot compare but it gives us an idea 🙂. The nurse told me I wont really feel any side effects for 5 weeks until the next injections.... certainly dont beloeve that!
Hi BreezyHaze
This is awful isn't it.
I'm on day 15, I have never felt well since day 1.
A couple of weeks before prostap I had a bad cold, that cleared up but since prostap I can only describe these side affects as a really really bad cold.
I have ulcers on my tongue a headache, my muscles and bones are aching so bad, constant burning uretha and burning when I wee and pure exhaustion.
I spent the whole weekend in bed, I went to work monday morning for 8.30am and left for home at 8.45am, I couldn't manage it.
Yesterday I only just managed it, it was difficult trying to pretend I wasnt in pain and fighting back tears as I feel so lousy.
When I left work on monday morning I went to my doctors they prescribed me some HRT, I'm hoping that it eases some of these symptoms.
My partner thinks I might of just had flu or something, I feel slightly better today and it's the first day in a long time I am managing without pain killers.
I am going to try my very best to stay on prostap for the 6 months as planned but I wont be able to manage it if I feel like I have done, I'm just hoping that today is the start of me feeling better.
I dont believe what your nurse said either, my bones and muscles started to ache 24hrs after the start of prostap.
It's an absolute shame that your having to spend your savings because of this horrible disease.
I hope both of our symptoms settle down.
If I have any changes with my side affects I will let you know, I know we are all different and we cant compare but it's nice to know xx
Hi Peoni! Sorry for the delay, I have been very poorly too and exhausted, not sure if down to Prostap but certainly way more tired!
I suffer from mjgraines anyway, and since my fibroids grew bigger and got very large, Ive now had one for almost 2 weeks, but it is very different than normal. My migraine meds get rid of it sometimes but comes back. My migraines were better controlled if as often, so I can only blame Proatap headaches. I was really hoping this injection would help them! This is really knocking me out more than usual as spent all weekend in bed as usual but the week after my period is usually my best..
After a week (14th Nov 1st injection) I felt awful, worse than my usual awful and now 2 weeks on the same.
I will type more soon, but hope you are feeling a bit better. Did you have your secons injection? Oh are you also more hungry? I am starving even after big meals. And have had 1 hot night flush and get one or 2 a day normal flush but not too bad!
Hi BreezyHaze,
It has been an absolute nightmare for me, I was meant to get the second injection on the 3rd of dec.
I couldn't do it, I have never felt so ill, I suffered with myocarditis in 2016 and the prostap has been far worse, I'm upset and frustrated that it didnt suit me.
I had an appointment last monday with my specialist due to the lumps I had developed around my vagina, turns out they were bartholin cysts, they have gone now.
I told him that there was no way I could take it again, I spent most of my time in bed, the aches, fatigue, headaches the feeling of severe depression setting in and my hair falling out.
I asked if I could just go on as I am and follow a suitable diet and lifestyle to manage symptoms until i hit the menopause as I dont want a hysterectomy if I can help it, the risks worry me.
He said that I have a severe disease and it will keep spreading if it's not suppressed, he wants to see me again at the end of January to talk about different types of treatment, some sort of suppressant, I'm apprehensive about this but he is the expert.
I did say to him that tramadol does help when I have pain and I have noticed if I cut gluten out my bowels are alot more settled.
I am so angry for us all suffering like this and I feel as if I'm stuck between a rock and a hard place.
My flushes didnt bother me much, I could of lived with those even though I was drenched most nights and yes my hunger pangs were bad, I have always ate alot just before my period but this was constant, it seems to of settled now.
I really hope you manage to take it, I have heard some bad but also good things about it, I just knew if the injection was to come any where near me I would of ran out of the room, to me it is poison.
He did say surgery is already risky without the endo getting worse.
I recieved my gynae medical records yesterday, my first appointment with a gynae was when I was 14 due to heavy painful periods, theres alot more entries than I remembered, I requested them because of a general gynae fobbing me off in 2014 even though I was first diagnosed in 2005.
All she did was an internal examination and an ultrasound which showed nothing, she basically said it was probably pains from my bowel, interesting to see she didnt note down what she had said to me.
I would put a complaint in if I could but to be honest it's too frustrating and I probably wouldn't get anywhere.
Sending you hugs, I'm hoping you feel better soon.
I feel like I've been to hell and back.
Xx
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