10years post menopause and still having pain with endometriosis.

[Di25_]

I had yet another laparoscopy about 7years ago for spotting and I was told my endometriosis had gone. If this is correct why am I still suffering? At this precise time I've been in a flare up for 2 weeks or more and it's the same pain. My back is so bad and my lower insides feel like they are getting ripped out. In a flare up i have when I use the toilet. Drs seem to think it's in my head as I have been through menopause. I feel like I'm going crazy and I'm so fed up of this . Does anyone else have the same????

[Di25_]

What a shame this has ended up as a battle of knowledge(i do appreciate that you have a colossal amount of knowledge in this department) and I'm also aware that sometimes wrong information can be given ,but not intentionally, however I feel I'm no further forward.

I've had this chronic illness for 30+ years and was first diagnosed straight after my first child as I developed pain and bleeding during pregnancy. After tests (while pregnant) it was decided I needed a laparoscopy after birth. The results where I had severe endo which has attached to my bladder, bowel and pelvic area. It was noted i had around 10 sightings of this. Since then I have suffered almost everyday . I started menopause at 40 and pain eased and I had longer spells of pain free but 7 years ago I started spotting and pain was back in force. I had a womb scrape and checked for endo. All was clear but I asked the doctor why was i still in so much pain? The exact pain as I always have had, he said probably just back pain!!!! . Now 7 year later and I'm still in pain, granted not as often but when it comes (like now) i have it constant for 3-4 weeks. The cosine in not does not stop the pain it only slightly eases it so I can go to work . Some days I just want to cry with the constant pain , I'm sick of been prodded and poked and made to think I'm a hypochondriac so opt not to go to GP . Thank you for your reply and I would be so grateful if you can give me your opinion, so fed up and at 53 i thought this would be over.

[Di25_]

Thank you for your reply. It was 26years ago (aged 28) when I was finally diagnosed. I don't think I had an endometriosis specialist then , it seemed it was relatively a newish condition ,or so I had the opinion. I had 5 more laparoscopy after this all because the pain was chronic and they kept wanting to see what was going on . I never had any removed ,not sure why, but I was prescribed a drug for false menopause at the age of 31 to cure it. This did nothing at all and since then just Codine for pain which when severe does not help. I didn't see group you mentioned but I'm knew to site . I always feel I'm being a bother to GP ,they try and tell me it can't be endo and just look at me with "what do you want me to to" look. I feel like a fraud but the pain certainly is not. I know very little about this disease so your opinion is much appreciated.

[Di25_]

Oh agree that I must still have it but why then would surgeon say no endo found? Oh my! 25years undiagnosed that's bloody rough on you. I live in North East near Newcastle