How do others deal with pain and manage t... - Endometriosis UK

Endometriosis UK

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How do others deal with pain and manage this whilst at work? Do others feel targeted by others at work or am I being paranoid?

pugmama_ profile image
11 Replies

I am new to endometriosis and welcome any advise on how to live with this condition, and want to feed others with information surrounding this under researched and none talked about condition.

I feel people without this struggle to understand how hard it is to get through day to day life, and feel victimised and discriminated at work for “over exaggerating” my pain and needs ie attending so many drs appointments, absences, and how it actually affects your mental health!

I work in a hospital pharmacy dealing with the procurement side of things. I do have a uniform for work but whilst my main work is a non patient facing role and within an office environment I am allowed to wear office clothing. I did recently start to wear my own clothing as I found this just added a little more comfort to day to day life. During a day at work whilst in the toilets I overheard 2 women discussing this which did really upset me as I’m not the only person to wear my own clothes, but felt targeted as why was my name the only name mentioned and why was I a topic of their conversation anyway!? This then resulted in me returning to wearing a uniform after purchasing comfier trousers.

Another way to help me get through a day is by warming up a wheat bag which I do in the shared microwave in the staff room. I’ve done this for the last 14 months and always ensure that I clean it and put paper towels down before use. The other day I was told I can no longer do this as someone had complained about me doing this after all this time! I’ve now got to go and buy either a hot water bottle or an electric heat pack.

Do others feel people treat them differently at work or am I just being overly paranoid and overthinking all recent events?

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pugmama_ profile image
pugmama_
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11 Replies
lekeendo profile image
lekeendo

Sounds like discrimination to me. Look at the Equality Act and Endometriosis for Employers Information pack, endometriosis-uk.org/sites/... and seek advice. There should be a grievance procedure, and you should consider reasonable adjustments.

pugmama_ profile image
pugmama_ in reply to lekeendo

Thank you, I’ve never had any problems before now it’s just started over the last 6 months! I thought I was being over dramatic and paranoid but thank you I will have a look into the link.

lekeendo profile image
lekeendo in reply to pugmama_

Yeah, it can happen anytime, discrimination and unfair treatment. Seek the help, you have rights. Do not let them grind you down, fight back.

gabbiefawn profile image
gabbiefawn

I’m lucky that my team really understand when I’m having a bad time but it’s not like that throughout my whole work place. I wear a tens machine when I’m having a flare up as it can be hidden and I don’t have explain myself to everyone why I have a hot water bottle. Xx

BrightLights88 profile image
BrightLights88 in reply to gabbiefawn

Hi can you tell me where you purchased yours?

gabbiefawn profile image
gabbiefawn in reply to BrightLights88

Mines from Lloyd’s pharmacy (uk) it’s only a cheap little one as I wanted to try one before I invested ££. It does the job xx

pugmama_ profile image
pugmama_ in reply to gabbiefawn

Never gave a tens machine a thought, like you say a much better idea as it’s a lot more discreet, thank you x

AllthatGlitters profile image
AllthatGlitters

I have been discriminated against in my last job due to illness, I took them for disability discrimination and won my court case. You are right people who don’t have endometriosis or any other illness really don’t have a clue what it is like to live in daily pain or try to cope with working.

These women are bi@@hes & I would have said something to them, put them right in their places as I guarantee they would never open their mouths again. It’s effectively bullying and discrimination x

pugmama_ profile image
pugmama_ in reply to AllthatGlitters

My friends and family have been telling me to take this further but I’ve been made to feel by those at work that it’s all nothing and I’m being too overly sensitive, enough to make me want to drop it all, but now I know why they’re trying to sweep it under the rug so much, because it is a possible court case on the horizon!! Thank you for making me feel like I’m not reacting over the top!

Trust me I’m tempted!! It’s so hard because I want to share awareness, but then it’ll only be for those at work who are just plain nosey and to feed into what they want and it not being for the greater benefit x

AllthatGlitters profile image
AllthatGlitters in reply to pugmama_

The best advice I can give you is to keep a diary, dates and what was said, who was present, any emails to back up what’s happening. Evidence is crucial as it’s then now “hearsay “, it’s proof. Hope that makes sense xx

Ecfwans1 profile image
Ecfwans1

I am currently going through things very similar within my work place they dont seem to understand how the pain effects me and that sometimes if I state I need tl gp the toilet I need to go i feel like people never understand but i hope this gets better for you xx

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