Endometrioma in abdominal wall

[lizzyxx]

I had a scan yesterday due to a lump I have in my lower left abdomen, the doctor performing the scan said he’s pretty confident that it’s an endometrioma and he’ll pass the results onto my consultant. Has anyone else had this before and knows what the next step will be? Thanks xx

[Seachel]

Yes, found one on each ovary six months after TAH. They removed my ovaries. You may be able to save one.

[lizzyxx in reply to Seachel]

Mines not on my ovary it’s in my abdominal wall, I have a lump I can feel on my stomach

[Seachel in reply to lizzyxx]

It could be adhesion or incisional hernia which are very common after any abdominal surgery. You have to just follow their steps and when it fails, say what’s next. I just went through a round of liver testing and ultrasound and the pain is still there. Now another doc.

[MrsWalshy]

Yes, I had an endometrioma removed from the edge of my c-section scar. The procedure itself was really straightforward.

However in may case it was done by a general gynae, who I feel was quite nonchalant about it, they'd just whip it out and that would be that. It transpires that they did not get it all, I was re-referred to a specialist and had an MRI which showed that it is more widespread in my scar and I have some adhesions that need dealing with. I am now awaiting a lap done by a specialist.

Sorry if this seems scary, I don't mean to alarm you. Just be aware that they really need to make sure that they get it all!

Good luck! x

[lizzyxx in reply to MrsWalshy]

Thanks for your reply, I’m already diagnosed with endometriosis but had it removed more than a year ago. My symptoms are back though and I’ve had this lump for a couple of months. It’s not near any of my scars though which I think is strange x

[TeddyCat15]

Hi, how did you get on with your lump? I've recently had an mri which showed a large endometrioma on my c section scar. I have an appointment with my consultant Tuesday to discuss the plan x

[lizzyxx in reply to TeddyCat15]

I’ve been diagnosed with 2 abdominal endometriomas, have an appointment on 2nd January to discuss options but it did state in the letter that if I go ahead with removal then it will be open surgery x

[Princess1984]

Hi! I had Endometrioma in abdominal muscle. Took me three years of nagging my gp I knew something was wrong. It was another endo forum which made me go back to the Drs. They then listened, sent back to Gynaecologist and mri found it. A whole weight was lifted. They used the previous c section scar to remove the lump. I was ok until seven months ago and it’s back. Consultant said he won’t do anymore surgery as it’s causing too much scar tissue and the section scar has been opened up three times for c sections too. I hope all is good with you, sending lots of love

[lizzyxx in reply to Princess1984]

Thanks for your reply, I got the results which were 2 endometriomas in my abdominal wall. Saw my specialist a few weeks ago and cos my symptoms have also returned he’s put me on the list for more surgery

[Princess1984]

I’m glad you’ve got the results and a weight has probably been lifted also. The first barrier is actually getting the dr to believe there’s something wrong. Hope all goes well and when you have surgery, don’t over do it. Let me know how you get on