Endo support please

[MrsRose23]

Hi,

After an increase in symptoms which are interfering with life I've revisited the gp who is saying it all sounds like endo.

I've not had official diagnosis through lap but gp has suggested cerazette to see how symptoms respond. I have previously been relieved of symptoms while on the deppo or pregnant.

I'm struggling coping with how I'm feeling, the impact on my mood, feeling anxious and being in pain. It's the pain I can't link to the endo that bothers me most. Stabbing pain that feels deep in my upper right abdominal area- like below my ribs. An increase in heartburn of which I now take ranitidine but also pain in my back same place as the front- it's always worse around ovulation and then the start of my period. This along with cramping, stabbing and dragging pains, rectal pain, rectal bleeding 1-2 days before period. I get days where I am completely fatigued, like my body feels exhausted and my muscles and joints ache. My sex drive is at an all time low. I ge5 hot prickly flushes... I just live each day trying to cope with new and worsening symptoms. What can I do to help myself!? What sort changes can I make, what exercise, how to I not be ruled by these hormones and pain. I am feeling very sorry for myself and I tell people I'm in pain and they think like period cramp and it's so much more than that!

[Pinkyandthebrain]

Hi,

Wow this is like a post I could have written myself 🙈

I really feel for you, it’s so miserable and lonely having all of these horrible symptoms that no one around you can understand!

I was diagnosed 3 years ago and am actually only just starting to understand that I was in a deep depression due to my endo symptoms.

I am now in a much better place mentally due to the following:

I exercise (semi) regularly.

I have a daily meditation practise.

I take 100mg of cbd every day without fail.

I see a counsellor and have been diagnosed with clinical depression.

I take 100mg of sertraline every day.

I am trying to be more open with work and the people in my life about my endo symptoms and the limitations it puts on me.

The last one is a work in progress because since puberty I have been hiding my symptoms from others, hence getting overwhelmed and depressed because I was trying to be a super human and do everything without help or admitting anything was wrong.

Anyway, this turned into kind of a long reply but your post really struck a chord in me.

Keep your head up, you will get there x

[MrsRose23 in reply to Pinkyandthebrain]

Thank you for your reply, it's exactly what I need to hear and I feel understood! I try to tell people but I don't think they understand the depth of it all and hear the word pain and assume it's like a headache....