10 years and still waiting for answers - Endometriosis UK

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10 years and still waiting for answers

Katiesalmond1 profile image
8 Replies

I started my periods when I was 10, and I was hospitalised a few months before my first period as I was having extremely bad pain in my stomach and pelvic area.

Since then it hasn't gotten any better. For the past 10 years I've been in constant pain. I have extremely heavy periods, I often have to change my pad up to 10 times a day and I always seem to leak. I also have go spend most of my period in bed because I can't move from the pain.

I also get very bad abdominal pains, and it gets to the point where I can't eat because of it.

Although I haven't yet been diagnosed with endometriosis, my doctor suspects I have it and I am now waiting for internal scans.

I was just wondering if anyone with endometriosis experiences these abdominal pains and how they manage them?

Thank you x

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Katiesalmond1
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8 Replies
mitch1119 profile image
mitch1119

I don't think they can diagnose endometriosis from an internal scan I believe you would have to have diagnostic laparoscopy which I had in 2014 then again in 2016 I have stage 4endo with liver lesions bowel and bladder. Xx

Katiesalmond1 profile image
Katiesalmond1 in reply to mitch1119

That's what I meant, I just couldn't remember what it was called xx

mitch1119 profile image
mitch1119 in reply to Katiesalmond1

Hope all go's well. 😘

Hi Katie, sorry for all this pain you're having.

I am facing the same situation as yours since my teen years.

It's been now 15 years of pain and waiting for the date of my diagnostic laparoscopy.

I try to cope with pain by using heating pads, pain killers and resting.

I agree with Mitch about that the absolute way to diagnose endometriosis is by laparoscopy.

I hope this helps and may you find relief and feel better soon.

Best wishes xx

Katiesalmond1 profile image
Katiesalmond1 in reply to

Thank you so much.

I hope the date for your diagnostics laparoscopic comes through soon xx

in reply to Katiesalmond1

Thank you dear 😘

Janeyd27 profile image
Janeyd27

The heavy bleeding could also be from adenomyosis - your symptoms sound very much like mine and I have both endo and adeno, but they didn't find the adeno for another 7 years - it might be worth asking for an MRI so you can know what you are dealing with asap. Tranexamic helped me with the bleeding side. Good luck xxx

Katiesalmond1 profile image
Katiesalmond1

I'll talk to my doctor about that, thank you xxx

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