Decapeptyl: Just wondering if anybody has... - Endometriosis UK

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Decapeptyl

Jeanchristine profile image
14 Replies

Just wondering if anybody has been given these injections for endametriosis.

Any tips on what 2 expect.

Any suggestions as to what could help me through it.

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Jeanchristine profile image
Jeanchristine
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14 Replies
O-35 profile image
O-35

I have been on them for 4 months now and they have changed my life haven’t had any bleeding or any pain only down side is the menopause side affects but now on HRT for the hot flashes but will take the hot flashes over the pain of endometriosis any day everyone’s body is different I found they helped me from the first one got my first hot flash the next day

Claireb79 profile image
Claireb79

I’m due to have my first injection tomorrow. I’ve been given Tibolone to take along side it (similar to HRT I think). It’s hard to find any real advice about it but pleased to hear Orla35 has had a good experience

O-35 profile image
O-35 in reply to Claireb79

I just got tibolone last week and so far so good I found a lady’s YouTube video about her experience helpful called fightingfaith give her videos a watch and good luck tomorrow

Claireb79 profile image
Claireb79 in reply to O-35

Thanks! I’ll give it a watch x

Claireb79 profile image
Claireb79 in reply to O-35

I can’t seem to find the video, can you tell me what it’s called?

O-35 profile image
O-35 in reply to Claireb79

Fightinginfaith

O-35 profile image
O-35 in reply to Claireb79

How did u get on with your first injection any side affects yet hope it went well

Claireb79 profile image
Claireb79 in reply to O-35

Ok, so I had to pick up the injection from the pharmacy myself and had a couple of hours before the appointment so I sat and read the inlay about the side effects. Holy crap. There are som many side effects! As a rheumatoid arthritis sufferer it is likely this drug may cause me a big flare up. I ended up in tears when I saw the nurse and we decided I need to get more information before I go ahead with it. So basically no Decapeptyl for me just yet.

I have never been tried on the Depo Provera injection so I may try that first. My Endo symptoms have improved since my laparoscopy in a December last year but I know it will come back badly as apparently it’s in the muscle wall. I need to do something but the inlay for Decapeptyl scared the crap out of me.

Jeanchristine profile image
Jeanchristine in reply to Claireb79

Good luck keep me posted please

Jeanchristine profile image
Jeanchristine

Thanks ladies. Please keep us updated on how your injections go. I went to my dr yesterday for infi needless to say i got no helo. Il look into tibolone thank you

Claireb79 profile image
Claireb79 in reply to Jeanchristine

Ok, so I had to pick up the injection from the pharmacy myself and had a couple of hours before the appointment so I sat and read the inlay about the side effects. Holy crap. There are som many side effects! As a rheumatoid arthritis sufferer it is likely this drug may cause me a big flare up. I ended up in tears when I saw the nurse and we decided I need to get more information before I go ahead with it. So basically no Decapeptyl for me just yet.

I have never been tried on the Depo Provera injection so I may try that first. My Endo symptoms have improved since my laparoscopy in a December last year but I know it will come back badly as apparently it’s in the muscle wall. I need to do something but the inlay for Decapeptyl scared the crap out of me.

Jeanchristine profile image
Jeanchristine

I had my 1st injection yesterday so fingers and toes crossed il be pain free i had my laparoscopy nearly a month ago and i have 2 say iv been in more pain since. My lower back and like menstrual pain. They did also put the marina in so this could also be the reason for this. Just waiting on a pain free day 😀

Claireb79 profile image
Claireb79 in reply to Jeanchristine

How are you feeling with it? Any side effects yet?

Jeanchristine profile image
Jeanchristine in reply to Claireb79

No i dont think so. Im at bit moody but other than that i feel ok. Due my 2nd 1 nxt week. Fingers crossed

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