Again, I am fed up and again I am in so much pain. I know right now it is because I am ovulating but I had a horrid sleep last night and was up early hours of this morning.
About a year and a half ago I asked my GP to refer me to a BSGE centre which she did. They referred me to their pain clinic first who helped with my numbness symptoms but nothing else. The only thing the DR did was examine me, explaining that my pouch of douglas is tender, and that my endo is most likely growing deep (I was diagnosed about 5 years ago under general and I was told it was minimal, then went back a year later for another op due to ongoing pain and was told no endo had grown back).
After a year with pain management I went back to the specialist and asked for an operation to determine where else my endo may be growing etc... he said that he would need to have a neurologist present and he thinks there will only be a 20% chance he will find endo due to the last op I had 4 years ago... I felt so dismissed.
They did not carry out an ultrasound or MRI and no other tests, and I feel that from reading posts on here, this is the norm? I just feel so frustrated. Half my life I have been in pain, which has only got worse with increased symptoms such as pain when using the toilet and shooting pains in my private parts. I was diagnosed 5 years ago and dismissed, then finally get myself referred to a specialist and feel dismissed again!
I have sent a letter to my GP asking if she can refer me to a BSGE centre in London, I guess this is the right thing to do?
I just feel so fed up and like I once again, haven't been taken seriously.