Treatment or what to do: Hi guys, I got... - Endometriosis UK

Endometriosis UK

70,588 members52,105 posts

Treatment or what to do

Kelsa profile image
1 Reply

Hi guys, I got diagnosed with endo in 2006 when I was 18/19 which which was a good diagnosis being that age as usually it takes years to diagnose.

So basically I had a lap and diathermy in 2006 and then 6 months of zoladex, then in 2008 I had a further lap and excision, and they left a litre of adept in as I think things were sticking, I also had the mirera put in and started in six months of zoladex. I can't remember where exactly it was I no it was on both pelvic sidewalls, setting to do with inginal nerve, which explained my pain down my leg and also on pouch of Douglas. So the pain settled for a while. Anyway it came back I tried danazol etc, then been on and off. Ever since I've been on zoladex/ triporelin on and off had at least 5-6 courses over the years and about to have just a three month course as soon as I get the script.

So I'm due for gynea to fit the coil next month. Personally I want another laproscopy and the coil put in then with zoladex afterwards instead of now.

My consultant left and I have a complicated history due to having a mitrofanoff so needed to be referred to someone else. But I'm still waiting.

Would you guys push for another lap? Also does putting in the mirena hurt.

Thanks x

Written by
Kelsa profile image
Kelsa
To view profiles and participate in discussions please or .
Read more about...
1 Reply
ILouiseP profile image
ILouiseP

Hi,

I had the mirena inserted as a form of 'treatment' for endo before having a lap when i finish my uni degree. I can't sugar coat it and pretend its pain free, its uncomfortable, but not to the point where I had to have them stop. I took 2 ibuprofen and paracetamol before going into the appointment and I'm glad I did. The rest of the afternoon after having it in, I had horrid period pains so I spent it in a warm bath with a hot water bottle.

Hope this helps, every woman's experience of having the mirena inserted is different. :) x

You may also like...

What treatments do you use for your Endo?

endo via lap when I was 19 after 5 years of pain. I was originally put on the combined pill which...

Advice on what to do next!

Prior to my surgery, the consultant had advised that they would excise any endo that they found,...

At such a loss on what to do

the surgeon had no idea where it came from and asked if I had been in a major car crash or had...

Starting Zoladex treatment and need advice!!

for a lap op! They found endo and an endo polyp which they lasered and fitted in a marina coil...

Unsure what to do next...

I’m really unsure which way to turn next, I had a lap last year and they found I had endo and...