Hair falling out- advice needed! - Endometriosis UK

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Hair falling out- advice needed!

D3107
D3107
19 Replies

Hello ladies

Hope everyone is feeling okay (or as okay as you can do!) today.

I’ve realised recently that after my laparoscopy, my diagnosis of endo and the stress of it all, I have started to lose hair in big clumps. I know this is a sign of stress and I am panicked about having bald spots. I appreciate this is a vanity problem but endo has taken enough from me, it can’t have my hair too!! Haha

Has anyone experienced this and have any advice as to how to reduce hair loss?

Thanks in advance :). X

19 Replies
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farahziya

Ah nooo :(

Sounds like stress from the op.

You can take biotin capsules, they help the body with the key ingredients for skin, hair and nail growth. That should help - you can get them from any health shop and amazon. It can take a few weeks to have an effect.

Next thing; take some time out for yourself; relax, have me time, look into mindfulness, yoga, breathing, I know it's all odd but when you read into it a healthy calm mind will help the body heal. We spend too much time living life but not actually living the moment xx

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D3107
D3107
in reply to farahziya

Thank you farahziya, I’ll look in Holland ana Barrett for some, hopefully they help!

I know we are always go go go and we forget to relax. Luckily I go on holiday soon so hoping the sunshine and relaxation helps too.

Thanks again! X

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Sfarre

My hair fell out in clumps in the weeks following surgery too, but seemed to right itself by three months post surgery and I now have a lot of one-inch length regrowth so it is growing back. I was getting quite alarmed by the quantity that was coming out in the shower and with standard hairbrushing. I don't think you should be too worried, unless it continues. I actually suspect it was from the general anaesthesia - its noted as a common side effect of that. Hope that helps!

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D3107
D3107
in reply to Sfarre

Didn’t even think it could be a result of anaesthetic, how odd! Thanks, I’m going to try not going to worry too much. X

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AllthatGlitters

I have hair loss and it’s getting me down, must be stress. Not had lap yet. Hope it gets better after I have had it x

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D3107

It is horrible isn’t it? Hope it gets better for you once you have your lap and get some answers! X

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AllthatGlitters

Me too thank you x

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gracieboos

Have you had your iron levels checked Hun? I had a lot of hair loss & put it down to Zoladex injections. Don't know if they contributed to it but the main factor was really low iron levels due to years of really heavy periods. Rectified itself after a while once I started taking iron tablets. X

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D3107
D3107
in reply to gracieboos

I’ve had blood tests today for my iron levels so that could be it too. I hope it is something that simple that can be rectified! x

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gracieboos
gracieboos
in reply to D3107

I hope so too Hun. I used to be in tears after washing my hair so understand how horrible it is. X

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D3107
D3107
in reply to gracieboos

I know, it sounds ridiculous doesn’t it but I have long, thick hair normally. I look ill enough without lack of hair. X

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AllthatGlitters

Our hair is what makes us feel feminine so I get where you are coming from. I am finding it everywhere and have started to tie it up now to hopefully keep it at bay x

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Hidden
Hidden

Hi, Sorry to hear this. It must feel so scary feeling so out of control with the body and what it is doing. This happened to me. It actually happened before the endo. However since turning to alternative therapies with the endo my hair has grown back. This entailed changing diet, taking protein powder drinks, supplements (iron a major one), acupuncture, bio-identical progesterone, strong probiotic, turmeric etc. There is hope so please dont worry. I would suggest seeking out a nutritionist who specialises in endo, take supplements - if you could afford then get tested for defiencies, take probiotic for gut (new research saying immune system at play with endo and 70% immune system is in our gut). Also a chinese herbalist/acupuncture. The western view of illness is very singular - it focuses solely on the organ or system implicated. In chinese medicine it incorporates the whole being and imbalance within your whole system - so hair thining is related to blood deficency so you get directed to supplements, foods etc that help that. Also endo is related to blood stagnation and also blood defiencey. So it all interrelates. Hope this helps? x

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D3107
D3107
in reply to Hidden

Thanks for this, it has given me a lot to think about. I’ve been for blood tests to determine what I am deficient in and I’ll be helped with it. I’m always looking to change my diet too so hopefully that helps x

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BethanyAnn

Hiya,

I’ve gone through this a few times and it’s awful, I bet my fiancé can’t stand hearing me complain about my hair loss anymore 😄

I’ve found that tri-cycling the pill has helped slightly rather than other hormonal treatments but my hair loss is definitely related to stress about hospital appointments, test results, more possible surgeries and just generally when the symptoms are so bad that it affects everything I do and I get myself worked up.

When I notice my hair loss, I wash my hair less each week and I stop using any heat appliances on my hair, even a hair dryer (which I hate because I have frizzy hair), I drink lots of water and focus even more on packing lots of vitamins into my diet and, most importantly I try to avoid stress and if I need to take painkillers every 4 hours of the day to make it bearable then I’ll do it 😂

Don’t worry, your hair will grow back - that’s what I’ve learnt and just try to find ways to keep yourself as calm as you can. Sometimes ditching the Endo diet and treating yourself to some choccy can really help the stress levels and lower stress levels is what you want 🙂

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D3107
D3107
in reply to BethanyAnn

My boyfriend keeps saying that I look okay and he can’t see any bald spots but I’m paranoid! It is horrid though isn’t it.

I’m going to try the pill, change my diet and take some supplements. I think it has been the stress of the diagnosis, dealing with the pain and finding out my fertility is low. It’s just a lot so I think my body is giving up.

I have stopped washing it for s few days to see if that helps too. Hoping it grows back soon! I’ve had a curry, chocolate and loads of snacks today so I can have a good balance :)

Thanks x

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Swats

Hi,

I had hair loss after my surgery too. I mentioned it to the surgeon on my 8 wk follow up app. He said things would return to normal and he was right. The hair loss has returned to normal. I’m now 15 wks since my opp and everything seems to be going ok.

I also had the injections prior to my opp.

I’m taking zinc vitamins too.

Hope this helps x

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D3107

Hi

Glad it has gone back to normal for you, hope mine does too! I’m only 7 weeks post op and it’s falling out, my head is extremely sore when I put my hair up too.

I’m looking at different vitamins so will add zinc to my list.

Thanks x

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Hidden
Hidden

Yes. I take iron, b12, bit D, biotin zinc etc all to help

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