I was diagnosed by laparoscopy 9 weeks ago and had my follow-up on Monday. Most pointless appointment ever in my 6 year journey to diagnosis. Nobody cared about the healing process and it was like talking to a wall. I was offered Mirena or nothing. I suggested treatment options which were instantly dismissed. The doctor basically told me what my pain is like and when I told him it is not, he just started again like a broken record.
So I hope it will be more successful for you, because I’m now in a worse position than before diagnosis. I went through the process, know I have it and still get fobbed off.
Thank you for responding. I’m so sorry to hear that. I really hope that things improve for you. It’s difficult when you feel alone and no one is on your side. I love my consultant. She’s straight to the point but also very caring and supportive. My appointment went really well though. She went through what they found and what she did and what happened etc... we spoke about the future and my next surgery so I was worrying over nothing 🤦🏻♀️
Did they speak to you after surgery and tell you if they found endometriosis or not? I found my follow up very disappointing, it was a case of ok so we lasered off the endo in multiple places, take your pill back to back or have the Mirena coil (which I didn’t want) and that was it, signed off and discharged despite the fact is told them I was still experiencing most of my previous symptoms and in a lot of pain. So now I’m just left with all the same symptoms and pain I had prior to surgery with no plan
Yes, she came round to see me not long after surgery so I was not really with it.
I can’t believe you’ve been signed off and discharged despite having issues still. Have you asked to be referred back? Don’t suffer. It’s not fair. Make sure you’re heard!
My appointment went well though, I really like my consultant. I don’t know why I was so nervous. We discussed my next surgery but she’s not willing to carry it out until I have cardiology investigations so she wants to see me again in 3 months. It feels like a long time but it’s not that long really. She pretty much told me everything she said before but this time I could ask questions and get answers etc... I felt emotional after my appointment as it’s a lot to take in and everything but I have to remain positive and see it through for now I guess. 😆👍🏼
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