Just a bit of a moan! Waiting waiting - Endometriosis UK

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Just a bit of a moan! Waiting waiting

vmagpie profile image
3 Replies

Hi ladies,

I had an mri on 5th aug and was told I’d get results in 10-14 days. I’ve been chasing it up since and it still hasn’t been processed.

I was told that when results were in I’d be booked for my first laparoscopy.

Finally today, I got to talk to the secretary of the consultant that requested it, she said I’m booked for another MRI this coming Monday, which I haven’t yet received a letter about, and is assuming they want both results before my next appointment. This means I’ve got another 4-8 weeks wait until those results are in.

Originally I was told I’d need two MRIs, I mentioned this at first mri and I can’t understand why they didn’t just do both then.

I know there are more urgent medical cases and I’m grateful for the nhs.

Think I’m just miserable. I’m in pain and have had ongoing symptoms since I was 17.. I’m 33 now and undiagnosed.

Feeling pretty sorry for myself

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vmagpie
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elmfb profile image
elmfb

I’m sorry to hear that you’ve had a long wait.. I’ve waited longer than I was given the impression I’d have to wait.. but I wasn’t given and mri.. I had an ultrasound and then was booked in to see a consultant at the hosp.. my ultrasound showed cysts according to one doctor, and another said no, but speculated it was endo (very confusing and a bit unsettling).

That was six weeks ago. I rang and rang (and raaaang) the clinic as heard nothing in all this time, no one answered or responded to my messages. I finally rang my GP and he explained it takes a long time as endo is non urgent.. lo and behold I received confirmation of the pre-op assessment in the mail a few days later which did make me wonder if someone had forgotten to submit something.

Anyway, I hope things move along more swiftly for you! 💕💕💕

vmagpie profile image
vmagpie in reply to elmfb

Hi elmfb,

Thank you. I had my second mri. Was told they needed images of a broader area, requested by the consultant after viewing images from the first 🤷🏻‍♀️.. even though when chasing it up I was told it hadn’t been processed..

It sometimes feels like we get lost in the system doesn’t it?

I’m glad you’ve got a date for pre op at least, let me know how that goes. Does that give you any idea of when lap date might be?

Wishing you all the best xx

elmfb profile image
elmfb in reply to vmagpie

Arrrgghh! It does feel like that, which compounds the ‘what’s going on inside me??!!’ feeling even more!

Best of luck to you too huny xxxx

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