MRI CT scan nothing !: Hi there - I have... - Endometriosis UK

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MRI CT scan nothing !

Sofi1990
Sofi1990

Hi there - I have done 2 MRIs and one ct scan the last 5 months

My left Fallopian tube is ‘ thicker ‘ than it should be .. as I’m experiencing the pain around that area...

Could I still have endometriosis?

5 Replies
oldestnewest

Hi Sofi1990,

Scans, blood tests and internal examinations are not a conclusive way to diagnose endometriosis and a

normal scan, blood test and internal examination does not mean that you do not have endometriosis.

The only definitive way to diagnose endometriosis is by a laparoscopy. This is an operation in which a

camera (a laparoscope) is inserted into the pelvis via a small cut near the navel. This allows the surgeon to see the pelvic organs and any endometrial implants and cysts.

We have lot's more information on our website that you might fin helpful: endometriosis-uk.org/inform...

Best Wishes,

M Mary

Volunteer Moderator

Endometriosis UK

Dear Mary , thank you very much for your email .

I have tried many things since February..

I do have so much pain 24/7 and obviously there is a high level of crp ..

I’m so ‘ scared ‘ eventually I’m going to have the surgery in the U.K. .. but I’m not bleeding heavily.. my question is can I still have it if I don’t have the ‘ have bleeding. As a ‘ number one sign’?

Thank you very much

Best wishes

Most definitely. I had an MRI with contrast dye and nothing apart from a fibroid showed up, had a laparoscopy 4 months later and they found multiple patches of endo in multiple areas.

Keep pushing for answers

All the best x

Sofi1990
Sofi1990
in reply to Char411

Really. ??

Thank you very much for your answer !!

Char411
Char411
in reply to Sofi1990

Only way they can really confirm and see what’s going on is with a laparoscopy.

I wish I’d known this 10 years ago when my GP first expected endometriosis and sent me for scans ( they were clear and I didn’t know then that endo doesn’t show up so I didn’t push for further) and continued to suffer until 2016 when my symptoms spiralled out of control and led me to really push for answers.

Good luck x

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