Another test ticked off the list in my fi... - Endometriosis UK

Endometriosis UK

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Another test ticked off the list in my fight for a diagnosis.....

Littlebirdy34 profile image
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This morning I had a colonoscopy to rule out any other causes for my pain and rectal bleeding. All clear so for me it still points to endometriosis. Unfortunately I had a negative lap in March where myself and my doctor believe something was missed. Hopefully an MRI next, a cystoscopy and I will see pain management. If all comes back clear my doctor will then refer me to A bsge centre. Keep fighting on my fellow fighters, we will get there x

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Littlebirdy34
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weekari profile image
weekari

It sounds like you've got a good perspective despite all of this.

I thought I'd comment to help spur you on. You're so right to trust your instincts. My GP thought I had endo and referred my to gynae. The gynae was adamant I didn't have it but they agreed to do the lap top 'ease my anxiety' (🙄). I had the lap 2 years ago nothing was found (other than fibroids) and so I was discharged with the usual ibs label as well as it being stress related and psychological. I stopped searching for an answer to my symptoms. I accepted that it must be stress related and kind of gave up my fight. I focused more on alternative therapies and stress management type things. Then my back pain got worse and I was eventually seen by orthopaedics and had an mri which discovered I had severe endo throughout my pelvis. This was just 6 weeks ago. I've still to see the gynae and try understand how this could've been missed. From the description on my mri, my insides are a total mess, my ovaries couldn't be located. From the description , it seems things have got a lot worse since the lap.

For years I've been saying that I feel inflamed and that my body just didn't feel right. I even felt that something was inside me. I should've trusted my instincts. I don't have typical endo symptoms, my periods are not an issue and my symptoms are all month. My main issues are chronic fatigue and hip & back pain and I also get abdominal pain & swelling. I get that Dr's may overlook people that don't fit textbook symptoms but I did have high ca125 and I've had high iron for 2 years despite being vegan & not taking it on supplements, so there were signs.

You're right to keep fighting. You're worth the fight. I hope you've got lots of good support around you and you are able to take good care of yourself.

Xx

Littlebirdy34 profile image
Littlebirdy34 in reply to weekari

Thank you for the reply. Although I get really anxious before a test, after it's done it spurs me on so much to keep going. Your story stays with me and I do hope I have some kind of diagnosis soon xx

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