Need more awareness of adenomyosis !

Hi all , I'm beginning to see that even some health practitioners are not fully aware of adenomyosis !! Even my dermatologist at a recent appointment had not heard of it but when I mentioned it was similar to endometriosis only then he understood a little, I had a lap test done in 2009 for endometriosis and it wasn't found but strange to think I could have had adenomyosis even back then but was only diagnosed in September 2017, I was told back in 2009 when I had the laposcopy that an adhesion or pouch was separated but no one can tell me why or what this was ? Just that I was given morphine ? I feel that if the problems are still a problem then there are other thing s that should be ruled out before we are disregarded and give up, can anyone relate to feeling like this before any kind of diagnosis x

[Becky100]

Yes I totally agree but I think the problem is much better than this. There isn't enough funding for the research and so they aren't even sure what cause is.

I suffered for over 17 years before it was diagnosed. I was told it was stress and just painful period. My gynaecologist made me believe that if I didn't have children in the next 2 years, I would then need everything removing (2 years ago). The specialist completely disagrees and said he can operate on my endo. I'm booked in for a Laparotomy on the 8th - first lap caused a bleed. We will then see which consultant is correct.

Once I've recovered I will be raising awareness about these diseases, not enough is being done today!