Endo and dysfunction bleeding

[Wildchild666]

I had my 11th op for endo and removal of ovarian cyst in January this year. After 10 years on depo and zoladex my consultant decided to give me a 6 month break which is OK but since then I've had more problems then before. Sorry in a for to much info but a month into stopping depo I started bleeding brown and black 2 weeks later had my period which lasted for a day. I decided to take my child to the park have a run around after him and all of a sudden was bleeding without warning I thought it was just a one off but now I do any exercise nothing you don't do at home ie clean etc and bleeding again which lasts around a hour. In between the bleeding I've noticed that I have a pain on my right side just above my my stomach and then that's when the bleeding starts. My gp refused to give me a smear test until 2020 as I had one in 2012 and I'm 30 in May. On top of other health issues which has signed me off work since Dec 2017. Its really depressing me and no one seems to want to get to the bottom of the issue. Anybody else had this issue as its not just affecting me I can't play with my child and do what a mother should. Any advice would be much appreciated

[Penelopeel]

That’s terrible. You need sorting out and your Gp is crazy not letting you have a pap until 2020!!! What is that??!! You have symptoms... you are bleeding.. it’s not the cervcal csncer screening program now .. its a woman with abnormal bleeding and a Pap smear is part of sorting that out. 2012 was your last pap.. that’s more than 5 years ago! You need another female Gp who will sort you out! Don’t you need a pelvic ultrasound ? Maybe a curette?? Are you taking any hormone tablets? I would change doctors it’s not good enough to be left bleeding and no one helping you!!!!!!!

[Wildchild666 in reply to Penelopeel]

It sucks as I've already done a private ovarian test so thinking of going down that route as peace off mind especially when I have a child. Thanks for the advice and support from everyone. Nice to know I'm not alone. The last op I had as with the previous ones I had endo in my pelvis but my consultant said why ever she can operate she is will. On my check up after 8 weeks she found some abnormal cells on my cervix which she took off using silver nitrate and informed my gp a smear was recommended. To me that says everything but definitely changing GPS today

[Ouchiegrouchie]

Oh my goodness, you poor dear thing. That is so many surgeries within your life. Ugh. My heart really goes out to you. I've only had 5 and nobody wants to touch me because I have adhesions and my last surgery she couldn't even enter laparoscopically because they were so dense (and I refuse to do another laparotomy).

Have adhesions come up? We're you ever diagnosed with Adenomyosis? Endo ofbthe uterus muscle. Your symptoms remind me of when I had it (uterus removal is the cure).

I know you may feel so beaten down, exhausted, but try your best to fight and be your own advocate I am new here, in America, and just did a bunch responses so you can read what's helped me there. I don't have kids, I can't imagine managing this with one. You are obviously a strong woman. Well done and keep trying. Loosing your job over it, I'm there too, is like the nail in the coffin. But do understand people become disabled, we never plan on it, it just happens to come of us. Keep your chin up, you are still a worthy person. Try to remain positive, looking for the silver lining, but in my experience, it is okay to have your pity party some days, allowing yourself to feel the reality and giving yourself a break, self understanding and healing. Have you tried or considered an anti-depressant? Cymbalta helped my back pain a good deal but even though I gave it a lobg time side effects were too much for me. Wellbutrin was not too bad on me, not in the pain area, but gave me a more hopeful outlook and a little more energy. Now I just use my thyroid meds as my anti-depressants along with Chinese herbs.

Sometimes it takes a while to get somewhere. I really like what the other responder said.

XOXO,

OG

[Wildchild666 in reply to Ouchiegrouchie]

Thanks for your support it sucks to think its a postcode lottery with treatment and like I mentioned on top of other health issues definitely feels like nobody listening. Nice to know I'm not alone in it all and actually can have a rant without people who don't understand the condition telling me to stop feeling sorry for myself 😌😌

[Ouchiegrouchie in reply to Wildchild666]

Yes, rant away, this is the kind of place to do so. Too often our caring, well meaning loved ones just want to offer fix-it advice instead of just agreeing and listening to the frustration of there appears to be no solution. Also, they don't have what we have so most don't get it.

Have you tried following the endo diet to see if symptoms lessen? For example, it excludes red meat (especially not well cooked kind like may favorite, rare steak or filet). I rarely eat it now and when I do wow do I notice it, worsened cramps, bloating and gas. It also produces estrogen which endo feeds on.

On really bad days I try to stick to broths, protein shakes (w/o much sugar), and maybe some toast or mashed potatoes, avoiding sugar is important too but when I feel that bad ice cream or pudding is my comfort.

XO,

OG