Other treatments apart from hormones?

[Lauren-1998]

I have probably asked this question before, but I was just wondering if anyone does not use hormone treatment for endo? And if not what works for you? It is just that I have the Mirena which is giving me awful pains and other problems such as needing to go to the toilet every 20 miniutes which I asked my GP if this is caused by the coil bu she said not but it is funny how this all started after having the coil inserted, however it is stopping the bleeding which is great. Also my Gyne told me that if my coil is removed there is a high chance that the endo will grow back. x

[Starry]

Hi xx

I stopped using hormone treatments. I had similar issues to you with the mirena, nagging mild daily pelvic pain in place of monthly severe period pain didn't work as a trade off for me, so I reluctantly remove it after 5 months.

I was extremely ill on zoladex so that didn't work either and one or both gave me severe low mood.

In the end I have just accepted the risk of recurrence. I read this scientific research on recurrent which seemed to me to suggest for endo type and severity cases like mine the risk still wasn't huge and hormones seemed to be more a delaying factor than preventative so I decided to be philosophical about it. Perhaps worth reading up on the rates for your type of endo as the risks varied and you may reach a different conclusion to me. ncbi.nlm.nih.gov/pmc/articl...

I do try to keep my diet to be super healthy and anti inflammatory with lots of fresh organic fruits and vegetables and supplements to support my immune system with immune boosting probiotics things like ginger, turmeric, echinacea. I'm gluten and dairy free too and avoid chemicals as much as possible as I'm sensitive to them.

I had a repeat mri due to pain and fatigue. A hydrosalpinx was found but that is believed to be a small bleed from surgery. Otherwise I was given the all clear endo wise, but it is only 7 months since excision.

If I had to use anything, as my next step I think I'd look into utrogestan which is supposed to be bio identical so have fewer side effects.

[Lauren-1998 in reply to Starry]

Thank you for your reply it was really helpful U am looking into diet alternatives but it is such a commitmentx

[Lauren-1998 in reply to Lauren-1998]

I have also been getting period pains without having a period

[Starry in reply to Lauren-1998]

Is that your body reacting to the coil do you think or does it predate the coil?

Yes to do a full endo diet is a commitment. You could start small though, eg keeping a food symptom diary and just try eliminating one easy thing, say dairy milk or caffeine.

[Lauren-1998]

I do believe that the coil has made some of my symptoms more severe such as the cramps.

[JOSANDY40]

There are several drugs they are inhibitors. Zoladex is one which shuts down the pituitary gland in your head so messages are not sent to ovaries, sometimes this can effect the thyroid. Sometimes on rare cases can cause pancreatitis, brain fog and very rare years of use inflammation of the brain which is very rare like all these drugs it takes 3 to 6 mths to completely settle down on.