consultation next week...feeling like a f... - Endometriosis UK

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consultation next week...feeling like a fraud

foursimplewords profile image
7 Replies

Finally seeing an endo specialist next week. Suddenly feeling like it's all in my head, sigh. What can I do to prepare? I don't get many symptoms unless it's my period then the pain is unbearable, and also some random stabbing pains in my lower pelvis.

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foursimplewords profile image
foursimplewords
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luthien profile image
luthien

on the endometriosis uk website, theres a consultants questionnaire which covers the questions they could ask. endometriosis-uk.org/public...

I found keeping a diary of how I felt during the times when it was bad a good idea, as I can show my specialist when it's bad. I am the same, I usually only get symptoms during my periods. But I now know sometimes I feel ill due to my endo a week before. Try to explain the symptoms as best as you can, if it helps write it down, along with if you are able to do stuff when it's bad, what can you do, what helps to make it a little easier to cope with.

foursimplewords profile image
foursimplewords in reply to luthien

thank you - my period is due in about 10 days and already starting to feel a bit rubbish so it sounds like we may be similar there xx

luthien profile image
luthien in reply to foursimplewords

aww nooo :( how do you feel before yours?

about a week before mine I get headaches, dizzy, fluey, bloated, then when it starts its like a tap (sorry!) and really achey spasmy pains, with stabbing pains, as well as dizzy and really wiped out.

princessk09 profile image
princessk09

Hey, to be honest I don’t have many symptoms and it only happens around my periods, ovulation and sex. I get random stabbing pains too.

I know how you feel about it being all in your head as I’m the same. However seeing an endo specialist was the best thing I did as he was really good and knew a lot about endo etc. Plus he suspects it based on my symptoms and pelvic exam pain and tenderness in my ovaries

foursimplewords profile image
foursimplewords in reply to princessk09

thank you xx

foursimplewords profile image
foursimplewords in reply to princessk09

did you get diagnosed with endo in the end? x

princessk09 profile image
princessk09 in reply to foursimplewords

No I’m still waiting a year later. Just waiting for a lap but have to see another gynae (5th one) to put me on the list as I’ve gone back to the nhs. However an endo specialist at spire thinks I have endo zx

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