Is there any one who has endo in the bowe... - Endometriosis UK

Endometriosis UK

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Is there any one who has endo in the bowel? I'm at the end of my rope.

Emmahuh profile image
5 Replies

So this is five years running but i cant take it any more. The pain is unbearable and they are trying to take my pain meds away from me. I know opioid addiction is something i don't want or need but they haven't given me any alternatives. If a dog was in this much pain they would put it down. Please give me anything to try? I've had the pill, injection,gnr,3 laparoscopys and most recently the coil. They have now given me some pills to stop my period for 3 weeks to give me a break. As my period has lasted two and a half weeks. I will try ANYTHING. Please someone give me hope.

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Emmahuh profile image
Emmahuh
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5 Replies
Shisacralhealing profile image
Shisacralhealing

HI, I have Endometriosis all all over my bowels. I usually get symptoms off constant nauseous feeling, vomiting and diarrhoea at the same time. Ringing in ears and cold sweats and shakes. I use to always be on the bathroom floor in pain.

Can I please ask what your diet consists of? X

Emmahuh profile image
Emmahuh in reply to Shisacralhealing

My diet isn't great if im honest. I home cook everything though so i stay away from fried food or anything like that. I am a fan of chocolate though.

Shisacralhealing profile image
Shisacralhealing in reply to Emmahuh

I slowly cut our beef, alcohol and dairy as I found these to be the worse with my Endometriosis. Painful in my bowels and I’ll always felt nauseous. Then I slowly started to remove meat completely and I occasionally eat seafood. I think you should attempt to remove things slowly to see what causes the flair ups as I understand everyone is different. Cacao is amazing for you and its antioxidants.

Find what works for you, there is always a healthier alternative for our food cravings xx

gracechang profile image
gracechang

Hey! I don't know if it's any use to you, but have you considered ear or body acupuncture? I used to get the NADA method, it helped a lot in college (before the diagnosis). I only stopped, because I felt like I was ok––and because I was lazy. (Hey, I was in my early 20s.) I should say that my endometriosis is mostly on the ovaries, and your results could be different. (I've started again with the NADA acupuncture to see how it goes this time.)

Someone on this site mentioned aromatase inhibitors as a possible treatment for cases that were resistant/unresponsive to hormonal treatment. I'm not a doctor or even a researcher in this field, but maybe it's worth a look for you. I've also included links to three medical studies about it from 2012, 2014, and 2016, so you have more sources to check out.

healthunlocked.com/endometr...

Aromatase inhibitors in the treatment of endometriosis (Menopause Review): ncbi.nlm.nih.gov/pmc/articl...

Potential role of aromatase inhibitors in the treatment of endometriosis (International Journal of Women's Health): ncbi.nlm.nih.gov/pmc/articl...

Aromatase Inhibitors for the Treatment of Endometriosis: A Review (American Society for Reproductive Medicine/Elsevier): ncbi.nlm.nih.gov/pmc/articl...

Emmahuh profile image
Emmahuh

Sorry for the late reply. Thank you both so much for replying. I will check out the links now and I'm now trialling taking bits out my diet. Thanks again

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