9 weeks post op and still struggling - Endometriosis UK

Endometriosis UK

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9 weeks post op and still struggling

Lydia98 profile image
6 Replies

Hi everyone this is my first time posting on here, I had my lap 9 weeks ago where endometriosis was removed from my bowl and both sides of my pelvis, adenomyosis was found in my uterus which couldn’t be removed.

I am still in loads of pain in my upper and lower tummy and I am constantly exhausted. Some days I’m okay but others I’m really struggling and have had to be signed off work for a total of 5 weeks all together now. Is this Normal?

I can’t keep going back to my consultant as he charges £190 a time to see him. I am just really struggling to cope, my quality of life is still rubbish and I’m beginning to feel really depressed.

I have another appointment with my consultant next month but I just want to know if this is normal?

Sorry I’m throwing myself a bit of a pitty party today.

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Lydia98
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6 Replies
Starry profile image
Starry

Huge hugs XXX that is a lot of surgery, especially if the bowel is involved. I had a similar op and was told 6 weeks was the minimum to be signed off but 12 was not uncommon. It actually has been 6 months for me and I'm just about to start a second attempt at going back to work after an unsuccessful attempt in November. But I went down with viral meningitis right after the op.

It all just takes time sweetie, be gentle with yourself xxx

Lydia98 profile image
Lydia98 in reply to Starry

Thank you so much for your reply, that has really reassured me! Being 19 I feel like I should be out with my friends but can’t. Sometimes I need to remind myself that I need to slow down and it’s okay not to be okay. Thanks again and I hope things are okay for you xx

Starry profile image
Starry in reply to Lydia98

You're welcome Lydia, I remember getting stressed at 12 weeks about it taking so long . You're unlucky to need such major surgery so young. I'm 42 and it's a tough thing to deal with at any age.

Thanks. Fingers crossed I will be alright this time, I just don't know if I'll make it as I've been left with chronic fatigue among other post op complications. The first time round I suffered weight loss (to the point of losing my hair) and anxiety attacks. I've regained a fair bit of the weight I've lost and work are now trying hard to help with a rehab lady supporting me, so I've a decent chance of success. If not I will just have to find a different path I guess.

Lydia98 profile image
Lydia98 in reply to Starry

It’s so horrible, I’m constantly exhausted too and it’s vile. Will pray for you and your recovery x

Starry profile image
Starry

Thank you xx you too. Feel free to pm me anytime too.

Lydia98 profile image
Lydia98

Aw thank you, you too! Xx

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