Endo story: Posted some of my endo story to... - Endometriosis UK

Endometriosis UK

70,470 members52,055 posts

Endo story

4 Replies

Posted some of my endo story to my twitter on Wednesday and have had the most amazing response from women all over the world.

It's here if anyone wants to read it

twitter.com/janeoreilly/sta...

4 Replies

So glad you’ve gotten so much support xx

Your tweets made me cry.

The first half of your story is so similar to mine and I’m on the waiting list for a hysterectomy and BSO. I’m nervous about this surgery but can’t go on as I am (I’m only coping at the moment because I’m on Prostap injections).

How are you feeling now? Xxx

poppy75 profile image
poppy75

You write beautifully. It makes me want to punch a wall regarding how much bad care so many of us have endured. I really hope you continue to finally get some relief and good support from your current specialist. Thanks for sharing xx

Starry profile image
Starry

I'm not on twitter to reply there. I knew you'd had it really bad but utterly horrified to read just how extremely bad and at the prolonged lack of care.

Well done for having the courage to share all of that. At least awareness is starting to improve thanks to brave women like you speaking out, forums like this sharing information and the new NICE guidance.

I truly hope that 2018 brings better things and life finally starts to improve for you after your ordeal.

You may also like...

Severe Endo IVF Success Stories

I have daily pelvic and leg pain....feeling very sad when I should be excited. Does anyone have...

stage 4 endo surgery - success stories?

couldn’t remove all my endo from my bowel/one of the ovaries and have said I will likely need...

IVF after stage 4 endo excised / removed your stories please

Hi All Question has anyone gone into have successful IVF treatment after having stage 4 endo...

Lap and no endo found, any success stories 2nd time round?

Evening all, As the title says on the 7th of March I had a diagnostic lap with general gynae and no...

Positive or Negatives stories of IVF with Stage 4 Endo?

Hi All, I've had three surgeries for endo and one previous round of IVF, I am also 39 years old...