My lower back hurts all the time. - Endometriosis UK

Endometriosis UK

70,523 members52,075 posts

My lower back hurts all the time.

Fatimaalh profile image
9 Replies

I have rectovaginal Endometriosis and my back hurts all the time. My body is weak and it feels like I'm out of energy! I'm on hormonal therapy now but the pain is still there. Does endo makes you feel tired all the time? Or hormonal therapy is the reason why? ..

Written by
Fatimaalh profile image
Fatimaalh
To view profiles and participate in discussions please or .
Read more about...
9 Replies

Have you considered trying Acupuncture? It might give you some additional relief?

Fatimaalh profile image
Fatimaalh in reply to Lizzielizzielizzie

No I didn't actually and my pain killers are not helping :(

Starry profile image
Starry

Huge hugs. This was my worst symptom pre op. I was sleeping literally all weekend to survive work and had to cut my hiurs. Endo itself can cause it as your body is battling inflammation constantly and trying to heal.

Hormone disruption doesn't help either and stress can aggravate it too. Zoladex did worsen it for me.

It's worth getting levels of thyroid, iron, magnesium, zinc, b12, vit d all checked as they can also cause fatigue.

Fatimaalh profile image
Fatimaalh in reply to Starry

I will be checked next week to make sure everything is still okay! I hope you're feeling better now?? Huge Hugs ): Xx

Starry profile image
Starry in reply to Fatimaalh

Not yet, I'm still having investigations for post op issues.

Char411 profile image
Char411

Backache is also my main symptom along with what feels like hundreds of others but the backache and pains are constantly there with some days being much worse than others. I feel like I live on my heat pad. I also have suspected rectovaginal endo, been referred to an endo specialist and waiting on an MRI. Fatigue is also something I struggle with along with a lack of motivation to do anything especially on my days off (I basically stay in my pjs and nap on and off for 2 days to recover from working and prepare for the week ahead, makes me feel really lazy :( ) As starry mentioned get vitamin levels checked, I was very low on vitamin D which was causing a lot of aches and joint pain. My GI gave me tablets and the joint pains and aches have subsided a lot and the fatigue improved very very slightly (took about a month plus to notice a difference)

Big hugs xxx

Fatimaalh profile image
Fatimaalh in reply to Char411

Awwh that sounds awful really!! ): I hope you feel better and stronger. *Hugs you Xx

Lizzielizzielizzie profile image
Lizzielizzielizzie in reply to Fatimaalh

Vitamin d recommended for all British adults in the uk in the winter so it’s worth taking anyway x

AJJ123 profile image
AJJ123

I had the same last month and it was horrible! It was constant and it felt so emotional about it. I went and had acupuncture two weeks ago and it worked for me, I can’t believe it. I recommend seeing an acupuncturist who has experience in endometriosis and fertility - might not work for everyone but it did for me and I will be going back next week for more.

You may also like...

Can adenomyosis hurt all the time?

November the pain is intense and it’s all the time. It got so bad that I couldn’t walk. Now I’m on...

Tired/sleepy all the time. Is it in my head?

sleepy all the time even though I'm not in pain and i get plenty of sleep. Is it in my head or does...

Is my lower back pain endo or not

reaching out again because im feeling alone. Since my last post ive been waiting for an apt at an...

Lower back pain & endo

Does anyone else suffer with terrible lower back pain when their endo kicks off? I don't get it all...

Lower back and coccyx pain

getting this bad pain that feels like it is about to go into a spasm in my lower back and around my...