I'm currently back under investigation again for pelvic pain on left side. It's the same pain I've had for 27 years and I had a hysterectomy and bso in February 2015. Previous to that I had 6 months of decapeptyl injections and I felt great, no pain at all, it was wonderful, so I was full of anticipation for the hysterectomy bso to work.
How wrong was I. It has progressively returned since then.
They removed my cervix in February 2016, but it's no better.
My gp thinks its undiagnosed endo or that was not found or removed during the operations, but I'm always met with consultants who are quite dismissive.
For example, my mum, aunt and both my daughters have endo but the consultants tell me it's not hereditary, decapeptyl is used for endo and pain disappearing is a clue that it's endo, but again they say not.
I had a deep ct scan on Friday on bladder renal area, but the pain us always in my hip bowel and left bum cheek.
It would be wonderful to hear from anyone who has/had a similar situation and if they could let me know what and who helped them.
Many thanks