I have not been diagnosed with endometriosis, but I'm currently struggling so much with symptoms and I want to ask for advice and whether anyone here has had a similar experience.
I will try to keep this as short as possible but I appreciate anyone who reads or has any advice for me.
I'm 26, no children/pregnancies. I have never had a regular period. I used to go months without any and have always struggled with heavy bleeding.
The past 3 years or so have been extremely difficult. I started with extremely heavy bleeding more or less each month and in the past 9 months I have had constant bleeding. It varies from light spotting to bleeding so heavily I can't leave the house. But there is some bleeding every single day. It's completely erratic and I have no warning when I will get a sudden heavy bleed. Might last a day, might last a week. I can't cope with this anymore.
I have taken tranexamic acid the past 5 or so months but it seems to lighten the bleeding while I take it then the bleeding is even worse when I stop.
I have tried cerazette for just over 3 weeks but am currently in so much pain and experiencing an extremely heavy bleed right now that I have decided to stop taking it. I don't know whether it's the tranexamic acid or the pill that's causing the pain.
I have had a pelvic ultrasound that has only shown small cysts and an enlarged left ovary.
My GP has said the cause is dysfunctional bleeding and that a referral to a gynaecologist is not necessary as they will just try to treat me with the same medication or coil.
Do my symptoms sound similar to anything any of you have experienced? My doctor has never mentioned endometriosis so I feel stupid even bringing it up.
Thanks in advance for any advice 😰