Total lapscopic hystrcomty

[babykaren]

Hi all hope everyone's well struggling with fatigue post hystrcomty is anyone feeling same 5 wks post op thanks

[Starry]

Hi, I'm 4.5 weeks post bowel shave and RV nodule excision but not hysterectomy and I am shattered. It's major surgery and can't take several months to recover X

[babykaren in reply to Starry]

Hi am not sure what you had done but good luck with yr recovery I didn't expect this long recovery I no were yr coming from been shattered glad I came across someone who feels same x

[Starry in reply to babykaren]

Removal of a 3 cm Endo lump attaching my bowel to my vagina ( RV = recto vaginal sorry ) and lots of adhesions that were pulling my bowel out of place anatomically. I lost 4 cm2 of my vagina as it was too damaged to save. Also had Endo patches removed from bladder and peritoneum near ovaries

[babykaren in reply to Starry]

Hi hun sounds so bad what you been therw how do you feel in yourself apart from tiredness mine as been he'll in out of gap for 3 years with adeymosis an surgery was nearly 5 hours with bladder joined to uterus x

[Starry]

Had it all my life and never knew. I started fainting unexpectedly last few years then developed chronic fatigue bowel and bladder issues . GP found the lump a year ago. My surgery went from 2 hours to over 4 as was much worse than they thought from scan. I am lucky to have escaped a bowel resection. It's been tough. I had bad complications and spent a week in hospital after surgery and lost a lot of weight. It's a slow journey recovering. I hear it can take months to adjust after hysterectomy so go easy.

[babykaren in reply to Starry]

Awww you been therw it hun sounds very painful am so sick of not been able to do what I won't could imange you feel same I have really fab consultant which am so glad of x

[Starry]

Glad you've had treat ment with a good surgeon. I was lucky too.

Go gently with your recovery. It is a big shock to your body. It will just take time X

[babykaren]

Amgladtohearthat hunyou tox

[Gilly1975]

Hi. I'm nearly 7 weeks post op. TLH BSO and excision of stage 4 endo. The fatigue is awful. I'm really struggling with insomnia too. I go to bed shattered and still can't sleep. Apparently it's one of the biggest side effects and lasts months 😢X

[babykaren in reply to Gilly1975]

Hi am 5 weeks post op an am exactly same it's terrible I go sleep for two hours an awake again most of night did you have ovaries removed an do you still suffer with swollen belly helps to no others are feeling the same x

[Gilly1975 in reply to babykaren]

Yes I had everything taken. My belly is ok until about 3 in the afternoon then starts bloating. I've lost a stone in weight since my op, I've got no appetite at all. I'm sure once 'normal life' is resumed the sleep issue will resolve itself. I've been out of bed just over an hour and could just crawl back into it now. When I do sleep I get awful vivid dreams xx

[babykaren in reply to Gilly1975]

Hi I no what you mean I kept my ovaries maybe it cos you have menopause you can't sleep are you on hrt I went therw it with prostrap injections before op an still have menopause symptoms x

[Gilly1975 in reply to babykaren]

Yes I'm on HRT patches. I was going to keep my ovaries at first but my surgeon and I decided to take the lot in the end as I wanted to reduce the chance of the endometriosis coming back. Even after all this, he said there is only a 60% chance of it working. I had to take the chance as I couldn't carry on like I was x

[babykaren in reply to Gilly1975]

Hi awww you been therw a lot I have adeylomosis has it improved yr symptoms then before op it's a nightmare I think I been ill for 3 years half of that spent in hospital is your consultant good an listen to yr concerns x

[Gilly1975 in reply to babykaren]

Oh that's awful. I really hate hospitals! My surgeons are great but my aftercare hasn't been great. Because I go through an endo centre I have a nurse that I can call. Over the last 3 weeks I've had infections and bleeding but my nurse was on leave with no cover so had to go through my gp who is useless. Too early to say if I feel any different yet. Have my follow up next Wednesday. Are you still getting pain?

[babykaren in reply to Gilly1975]

Hi hun that's not great after is it my surgeon is great I was put on enhanced recovery programme for 3mnths an y problems I phne hospital an told to go in I hate hsp to no my pain gone I was in agony before still have op pain across wounds do you still have pain x

[babykaren in reply to Gilly1975]

Hi hun that's bad after care it's a joke I hate hspital to but have fab consultant my pain b3fore op has gone completely but wounds still sore op pain now an again fatigue is hrrilbe how is your pain x

[Lallya in reply to babykaren]

Hi babykaren. I'm 4 weeks post op and had everything removed apart from ovaries like yourself. I had prostap injection in april but still having side effects, hot flushes and severe night sweats. My dr prescribed me amitriptyline to help me sleep they are a god send. I am suffering with fatigue don't t know if its my tablets or after effects from my operation.

[babykaren in reply to Lallya]

Hi hun was that injection you had in April yr last one I think tiredness is operation prostrap injection I've had he'll with affect3d my liver x

[Lallya in reply to babykaren]

The injection was april 2017 only had 1 injection to last until my op. Consultant said it last 12 weeks mine has lasted alot longer. Nearly 20 weeks. I'm 37 so it's not the official menopause i hope. Just hoping it wears off soon. I had aching bones and joints like i had flu still have but not as painful. I was put on hrt to prevent the side effects to which i had a reaction to hrt really tender breast and mega headaches. Changed hrt to another then bled for the full month. I decided to put up with hot sweats. What us women have to go through. You seem to be having as much as a bad time as me. Hope theres light at the end of the tunnel for us both x

[babykaren in reply to Lallya]

Hi hun it's bad isn't it I was told prostrap was monthly injections so thght was gonna be out of system so glad come across some one like me prostrap give me violent headache like you with hrt I ended up in hspital with 2 weeks ago for clpe days had to I've lumbar puncture why did u have hystrcomty x

[Lallya in reply to babykaren]

It sure is good to hear someone else is like me. I had ademyosis. Been suffering for years.

[babykaren in reply to Lallya]

Hi hun same here x

[Lallya]

Thats good to find someone else with same condition and struggling the same without sounding horrible.

[babykaren in reply to Lallya]

I no what you mean

[Lallya in reply to babykaren]

I also keep getting a stabbing pain near my belly button I'm just presuming its healing pains. I go to see my consultant on 8th sep so I'm going to mention it to him. What area are you from?

[babykaren in reply to Lallya]

Hi hun I've been getting same pain across belly button myself was getting worried I think i wldnt leave it till 8 Liverpool hun were are you from x

[Lallya in reply to babykaren]

I'm from bolton but now live in wigan. I'm getting frustrated with taking it easy now and just want to do normal things like driving and hoovering how sad do i sound lol. People keep asking have i become emotional yet? Have you? Small steps not big leaps i keep telling myself. X

[babykaren in reply to Lallya]

Hi hun no you don't sound sad at all am same I hovered the other day an now paying price be patient with yrslf it's very frustrating am not emotional are you bit ratty lol but thing it's tiredness didn't have ovaries removed did you x

[Lallya in reply to babykaren]

No i don't feel ratty or emotional yet. I feel exhausted all the time even though i haven't done anything. My ovaries are still in consultant wouldn't remove them due to my age. I'm getting breathless when i walk far eg supermarket. I was due back at work end of this month but don't think that will be happening. Just take each day as it comes. I'm trying to do more each day to build up my strength. I'm due a course of vitamin d injections as my levels were very low. This might help with my fatigue. That's if i can face injecting myself. X

[babykaren]

Hi hun I've been getting same pains would mention sooner rather than later Liverpool what area are you from x

[babykaren]

Hi hun you been threw a lot never thought recovery was this long breathless cld be stabbing pain a lot in tummy an feel sick it's nightmare