Endo getting worse : Hello This is my... - Endometriosis UK

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Endo getting worse

Linda_clln profile image
2 Replies

Hello

This is my first post on here.

I was diagnosed with endo a year ago. The surgeon said it was only mild but I know it has got a lot worse and spread to different parts, it also feels like I have cysts.

I'm constantly going back to the GP asking to be referred back to the hospital, finally after a very painful failed attempt of having the coil fitted. I have been referred to gynaecologist.

I also have another chronic pain condition called fibromyalgia which the GP's like to blame my pain on but I know my body and I know fibromyalgia doesn't cause all the Endo symptoms I have been having. It does enhance the pain.

I'm on the mini pill which I was told would stop the pain and bleeding. My periods have stopped but the pain gets so bad that sometimes I can't stand.

If sorry if this post is confusing, I think I just wanted to tell someone who understands as I have no support from my partner and my family live 240 miles away. I have 2 young children that I feel I can't be a fun loving mum to as I'm always tired and in pain.

If you got this far in my post thank you for reading it

Xx

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Linda_clln
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2 Replies

Hey

I'm sorry you're dealing with all of this. You know your body best, so don't let them brush you off! I can understand how you feel from a pain standpoint.

I do not have fibromyalgia but my sister does, so I know how doctors treat fibro patients.. they just blame everything on the incurable disease 🙄.

I have been referred to get a laparoscopy done for possible endo since my periods have stopped for 6 months now, and it runs in the family. I'm sure your kids will end up understanding that you are doing your best!! My mom has been through hell while I was growing up but I know she is always there for me no matter what is going on with her.

It is a shame that you have no support from your partner.. sounds like they are pretty clueless. My fiancé has been helping me through everything. I hope your partner will come around and be supportive.

If you ever need to vent you can pm me x

Linda_clln profile image
Linda_clln in reply to

Thank you for replying to my post.

I hope you get your appointment soon, it's horrible having to wait to find out what's wrong with you.

Endo and fibro run in my family (I'm one of 7) so I have seen the worst case in both conditions, but no one has both together.

Which I think confuses my GP's as all they want to do is give strong pain meds.

X

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