I can't stop crying, I ended up in the emergency room on Wednesday night because the pain got really bad, (stage 4) I had to go back today for a scan only to be told that as well as my previous cyst refilling with blood and now at 4cm (only had my lap 7 weeks ago and it was drained) I now have Adenomiosis, it has knocked me for six, I don't think I can take any more of this, been trying to get pregnant for 6yrs and now I am scared I am going to have to have a hysterectomy, I am on so much pain relief I have had enough 😭
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Nikki84
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I'm sorry I don't have any advice to give you but just know we're always here to listen x some days are bad and some days are worse but we're here for you xx
hi. How you feeling today? I'm sorry you're in so much pain, I have grade 4 and a frozen pelvis and have an idea of what pain your in☹ . Have you seen the pain team? They helped me alot and I would highly recommended asking to be seen by them. Cyst are a nightmare, I had 4 and w one was in a difficult position and kept bleeding and causing so much pain, thankfully I have received very good care from both my local hospital and the bsge centre. Do they intend to remove them?
we are blessed with a 6 year old but have been trying for another for the last five and a half years and I know how stressful it is, we only found out about the endometriosis in September 16 so its been an emotional rollercoaster.
if you want to have a chat I generally check in every 2/3 days.
I have been assessed by the pain team about 2 months ago but they don't want to add any more chemicals to my system at the moment because of all my other health problems, they said ones I have had my lap and had children then they would be happy to take my case, I am on 15 different meds at the moment and have a lot of other physical health problems, I became paralysed about 10 months ago and they don't know why, a lot of different things showed up on all my tests, I spent 3 months in hospital being used as a Guinea pig and having to learn to walk again, I don't know what I did to deserve all this, must of broken a lot of mirrors or something. I go back to see my surgeon on the 24th so will have to wait and see what he says about the new find x
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