Struggling : Hi ladies, I can't stop... - Endometriosis UK

Endometriosis UK

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Struggling

Nikki84 profile image
3 Replies

Hi ladies,

I can't stop crying, I ended up in the emergency room on Wednesday night because the pain got really bad, (stage 4) I had to go back today for a scan only to be told that as well as my previous cyst refilling with blood and now at 4cm (only had my lap 7 weeks ago and it was drained) I now have Adenomiosis, it has knocked me for six, I don't think I can take any more of this, been trying to get pregnant for 6yrs and now I am scared I am going to have to have a hysterectomy, I am on so much pain relief I have had enough 😭

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Nikki84 profile image
Nikki84
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Kfaiza1999 profile image
Kfaiza1999

I'm sorry I don't have any advice to give you but just know we're always here to listen x some days are bad and some days are worse but we're here for you xx

Tillyfloss profile image
Tillyfloss

hi. How you feeling today? I'm sorry you're in so much pain, I have grade 4 and a frozen pelvis and have an idea of what pain your in☹ . Have you seen the pain team? They helped me alot and I would highly recommended asking to be seen by them. Cyst are a nightmare, I had 4 and w one was in a difficult position and kept bleeding and causing so much pain, thankfully I have received very good care from both my local hospital and the bsge centre. Do they intend to remove them?

we are blessed with a 6 year old but have been trying for another for the last five and a half years and I know how stressful it is, we only found out about the endometriosis in September 16 so its been an emotional rollercoaster.

if you want to have a chat I generally check in every 2/3 days.

take care 😊. Xx

Nikki84 profile image
Nikki84

I have been assessed by the pain team about 2 months ago but they don't want to add any more chemicals to my system at the moment because of all my other health problems, they said ones I have had my lap and had children then they would be happy to take my case, I am on 15 different meds at the moment and have a lot of other physical health problems, I became paralysed about 10 months ago and they don't know why, a lot of different things showed up on all my tests, I spent 3 months in hospital being used as a Guinea pig and having to learn to walk again, I don't know what I did to deserve all this, must of broken a lot of mirrors or something. I go back to see my surgeon on the 24th so will have to wait and see what he says about the new find x

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