Hi new to the group : Hi newly diagnosed... - Endometriosis UK

Endometriosis UK

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Hi new to the group

Lynsey80 profile image
Lynsey80
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Hi newly diagnosed but not officially but traumatic all the same 😫. After been told l'am peri-menopausal this year after having hot flushes and a change in my cycle to very heavy 4/5 week bleeding terrible pain and discomfort they sent me to hospital had endoscopy, biopsies, and a coil fitted Omg the pain during this procedures gas and air was given had to go for anaesthetic, l would like to say my pain threshold is normally quite high.

The consultant does believe l have endometriosis and feels if the coil is not going to suit a hysterectomy is the way forward, just wondering if the coil has helped others?.

Many thanks

Lynsey age 44

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Lynsey80
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Fabbird profile image
Fabbird

Hi Lynsey, I'm 50 and the Mirena has helped me a lot until very recently. I'm now peri menopausal and the pain has returned, which I suspect is because my natural progesterone levels will have dipped before my oestrogen. I'm now thinking about taking a higher dose of progesterone, i.e. The mini pill.

My understanding is that there is no evidence a hysterectomy helps endo. Are you under an endo specialist? If not, you should ask for a referral. Look up the register here

bsge.org.uk/centre/

Good luck!

Lynsey80 profile image
Lynsey80 in reply to Fabbird

Hi many thanks for your advise not under any specialist as yet as they wanted to see what effect the coil make.

I will look from the list you sent and do some research as this is all new to me.

Many thanks you have been very helpful

Lynsey x

Fabbird profile image
Fabbird in reply to Lynsey80

When you've done your research, if I were you I'd ask your GP for a referral to one of the BSGE centres soon (no doubt it will take a while before you are seen). Sounds like you already have suspected endo, so your GP should oblige. A specialist will be able to confirm the diagnosis and offer advice on treatment options. If you are like me, then the Mirena isn't enough in the peri menopause.

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